People are increasingly able to generate their own health data through new technologies
such as wearables and online symptom checkers. However, generating data is one thing …

It has become a trope to speak of the increasing value of health data in our societies. Such
rhetoric is highly performative: it creates expectations, channels and justifies investments in …

Understanding of the value of patient and public involvement in research has grown in
recent years, but so too has uncertainty about how best to practice and how best to report …

Communication technologies increasingly mediate data exchanges rather than human
communication. We propose the term data valences to describe the differences in …

Patient-reported outcome data have moved from the realm of research to center stage in
efforts to provide patient-centered care. In a Danish context, health authorities are seeking to …

In the early 2000s, I was part of a team of researchers and health system decision makers
leading a study of public involvement in regionalized health systems across Canada. 1 The …

Data as a discursive concept in and around data‐intensive health and wellness
communities evokes multiple social values and social lives for data. Drawing on two years of …

The rapidly increasing volume of health data generated from digital technologies have
ushered in an unprecedented opportunity for health research. Despite their promises, big …

Research data may be of great utility to study participants and their clinicians in
understanding and managing the health of patients who participate in research, depending …

We highlight two contemporary trends that would benefit from more focused research as
they have the capacity to significantly reshape health system delivery in the coming decade …