[HTML][HTML] Reconsidering frameworks of Alzheimer's dementia when assessing psychosocial outcomes

JE Gaugler, LJ Bain, L Mitchell, J Finlay, S Fazio… - Alzheimer's & Dementia …, 2019 - Elsevier
The purpose of this introductory article to the special issue on psychosocial outcome
measures in Alzheimer's & Dementia: Translational Research & Clinical Interventions is to …

A dyadic perspective on assessment in Alzheimer's dementia: Supporting both care partners across the disease continuum

S Orsulic‐Jeras, CJ Whitlatch… - … Research & Clinical …, 2020 - Wiley Online Library
Written from a dyadic strength‐based perspective, this article first provides a brief overview
of the Education, Information, and Support section of the 2018 Alzheimer's Disease …

[HTML][HTML] Mixed-methods study on caregiver strain, quality of life, and perceived health

C Di Lorito, A Bosco, M Godfrey… - Journal of …, 2021 - content.iospress.com
Background: Caring for someone with dementia is associated with negative and positive
experiences. There is little evidence based on large datasets. Objective: To present data …

Understanding and measuring the wellbeing of carers of people with dementia

NA Cunningham, TR Cunningham… - The …, 2019 - academic.oup.com
Abstract Background and Objectives To determine how the wellbeing of carers of people
with dementia is understood and measured in contemporary health research. Research …

Quality of life in dementia: ten years later

PJ Whitehouse, MB Patterson… - Alzheimer Disease & …, 2003 - journals.lww.com
Quality of life (QOL) as a psychological construct and a goal of clinical practice sits
challengingly at the interface of science and our life stories. In the past 10 years, 1 we have …

Well-being in dementia: a cross-sectional dyadic study of the impact of multiple dimensions of strain on persons living with dementia and their family care partners

LM Miller, JA Kaye, KS Lyons, CS Lee… - International …, 2019 - cambridge.org
Background and Purpose: The impact of dementia-related stressors and strains have been
examined for their potential to threaten the well-being of either the person with dementia or …

[HTML][HTML] Measuring the well-being of people with dementia: a conceptual scoping review

C Clarke, B Woods, E Moniz-Cook, G Mountain… - Health and quality of life …, 2020 - Springer
Background Enabling people with dementia to 'live well'is a policy and research priority in
many countries. However, instruments for measuring outcomes of psychosocial …

[HTML][HTML] A comprehensive model of factors associated with capability to “live well” for family caregivers of people living with mild-to-moderate dementia: findings from …

L Clare, YT Wu, C Quinn, IR Jones… - Alzheimer Disease & …, 2019 - journals.lww.com
Methods: We analyzed data from 1283 caregivers of community-dwelling individuals with
mild-to-moderate dementia in the Improving the experience of Dementia and Enhancing …

Predictors of family caregiver ratings of patient quality of life in Alzheimer disease: cross-sectional results from the Canadian Alzheimer's Disease Quality of Life Study

G Naglie, DB Hogan, M Krahn, SE Black… - The American Journal of …, 2011 - Elsevier
Objectives To assess whether the core symptoms of Alzheimer disease (AD) and caregiver
factors consistently predict family caregiver ratings of patient quality of life (QOL) as …

We'll fight it as long as we can: Coping with the onset of Alzheimer's disease

L Clare - Aging & mental health, 2002 - Taylor & Francis
The onset of dementia places major demands on coping resources, and the development of
adaptive coping strategies is crucial in optimizing well-being and minimizing excess …