Using observation as a data collection method to help understand patient and professional roles and actions in palliative care settings

C Walshe, G Ewing, J Griffiths - Palliative medicine, 2012 - journals.sagepub.com
Background: Observational research methods are important for understanding people's
actions, roles and behaviour. However, these techniques are underused generally in …

Specialist palliative care: patients' experiences

J Seymour, C Ingleton, S Payne… - Journal of advanced …, 2003 - Wiley Online Library
Background. Nursing research generally, and palliative care research in particular, has
been criticized for generating numerous small scale, often qualitative and/or evaluative …

Implementing person-centred outcome measures in palliative care: an exploratory qualitative study using normalisation process theory to understand processes and …

A Bradshaw, M Santarelli, M Mulderrig… - Palliative …, 2021 - journals.sagepub.com
Background: Despite evidence demonstrating the utility of using Person-Centred Outcome
Measures within palliative care settings, implementing them into routine practice is …

[图书][B] Participatory research in palliative care: Actions and reflections

JM Hockley, J Hockley, K Froggatt, K Heimerl - 2013 - books.google.com
Participatory research is a relatively new method of researching practice especially within
palliative care. It differs from other methodologies in that there is an expectation of action …

The analysis of qualitative data: processes and pitfalls

KA Froggatt - Palliative medicine, 2001 - journals.sagepub.com
This is the first of two papers that describe the analysis of qualitative data and the use of
computers and relevant software within this process. Qualitative data analysis is a complex …

Palliative care, care for life: a study of the specificity of residential palliative care

N Cannaerts, BD de Casterlé… - Qualitative Health …, 2004 - journals.sagepub.com
In this study, the authors describe the concept of palliative care as applied in a palliative
care unit. They conducted in-depth interviews with 8 patients, 9 relatives, and 24 caregivers …

Gaining and maintaining consent: ethical concerns raised in a study of dying patients

J Lawton - Qualitative Health Research, 2001 - journals.sagepub.com
This article provides a frank discussion of the practical and ethical issues that emerged
during the process of setting up and conducting a participant observation study within an …

Patient participation in palliative care decisions: an ethnographic discourse analysis

E Bélanger, C Rodríguez, D Groleau… - … Journal of qualitative …, 2016 - Taylor & Francis
The participation of patients in making decisions about their care is especially important
towards the end of life because palliative care decisions involve extensive uncertainty and …

Qualitative methods of data collection and analysis

S Payne - Research methods in palliative care, 2007 - books.google.com
This chapter provides an introduction to qualitative methods of data collection and analysis.
These are among the most useful and frequently used methods in palliative care research …

Patient and public involvement in palliative care research: what works, and why? A qualitative evaluation

H Johnson, M Ogden, LJ Brighton… - Palliative …, 2021 - journals.sagepub.com
Background: Public involvement is increasingly considered a prerequisite for high-quality
research. However, involvement in palliative care is impeded by limited evidence on the …