Beyond the individual: community‐centric approaches to increase diversity in biomedical research

KE Brown, AE Fohner… - Clinical Pharmacology & …, 2023 - Wiley Online Library
Community‐centric approaches to engage underrepresented populations—including
community engagement, community‐level consent practices, and capacity development for …

[HTML][HTML] Innovation in large-scale research programs: elevating research participants to governance roles through the all of us research program engagement core

A Fair, KS Watson, EG Cohn, SM Carpenter… - Academic …, 2022 - journals.lww.com
Problem Despite the successes of communityengaged research in advancing research
relevance and health equity for diverse communities, the impact of this research has been …

Community-academic partnerships to embrace and ensure diversity, equity, and inclusion in translational science: Evidence of successful community engagement

JP Nanda, RS Clark, JA Harrison, P Ouyang… - Journal of Clinical and …, 2023 - cambridge.org
Community-Research Advisory Councils (C-RAC) provide a unique mechanism for building
sustainable community-academic partnership, fostering bidirectional understanding of …

Rethinking benefit and responsibility in the context of diversity: Perspectives from the front lines of precision medicine research

EE Vasquez, N Foti, CE McMahon, M Jeske… - Public Health …, 2023 - karger.com
Introduction: Federal agencies have instituted guidelines to prioritize the enrollment and
retention of diverse participants in precision medicine research (PMR). Prior studies …

[HTML][HTML] Community engagement and clinical trial diversity: Navigating barriers and co-designing solutions—A report from the “Health Equity through Diversity” …

L Reopell, TS Nolan, DM Gray, A Williams… - PloS one, 2023 - journals.plos.org
Introduction In recent years, there has been increasing awareness of the lack of diversity
among clinical trial participants. Equitable representation is key when testing novel …

Improving diversity in study participation: patient perspectives on barriers, racial differences and the role of communities

L Shea, J Pesa, G Geonnotti, V Powell… - Health …, 2022 - Wiley Online Library
Introduction The lack of racial/ethnic diversity in research potentially limits the
generalizability of findings to a broader population, highlighting the need for greater diversity …

360 degrees of human subjects protections in community-engaged research

LF Ross - Science Translational Medicine, 2010 - science.org
With the introduction of the new National Institutes of Health Roadmap in 2003, there has
been a growing emphasis on translational research. Translational research challenges …

[HTML][HTML] Considerations for embedding inclusive research principles in the design and execution of clinical trials

U Peters, B Turner, D Alvarez, M Murray… - … Innovation & Regulatory …, 2023 - Springer
There is a growing recognition that the clinical research enterprise has a diversity problem,
given that many clinical trials recruit historically marginalized individuals or patients …

Community-based participatory research and its potential role in supporting diversity in genomic science

T May, S Bogar, R Spellecy, W Kabasenche… - Journal of health care …, 2021 - muse.jhu.edu
Objectives. This paper seeks to understand why targeted efforts to recruit subjects from
underrepresented communities have failed to meaningfully increase diversity of genomic …

Why we need community engagement in medical research

JK Holzer, L Ellis, MW Merritt - Journal of Investigative …, 2014 - journals.sagepub.com
Background The medical research enterprise depends on public recognition of its societal
value. In light of evidence indicating public mistrust, especially among minorities …