Attending to child agency in paediatric palliative care consultations: Adults' use of tag questions directed to the child

K Ekberg, S Ekberg, L Weinglass… - Sociology of Health …, 2022 - Wiley Online Library
Children's agency in their own lives is increasingly recognised as important, including within
paediatric health care. The issue of acknowledging child agency is complex in the context of …

Uncertainty, responsibility, and reassurance in paediatric palliative care: A conversation analytic study of telephone conversations between parents and clinicians

HM Sansone, S Ekberg, S Danby - Qualitative Health …, 2022 - eprints.qut.edu.au
Background: Families play a vital role in the day-to-day medical care of children with life-
limiting conditions. Navigating their child's symptoms, treatments, and the possibility of …

Discussing death: making end of life implicit or explicit in paediatric palliative care consultations

S Ekberg, S Danby, J Rendle-Short, A Herbert… - Patient education and …, 2019 - Elsevier
Objective To consider whether and how family members and clinicians discuss end of life
during paediatric palliative care consultations. Methods Nine naturally occurring paediatric …

Smart, vulnerable, playful or just disturbing? A discourse analysis of child involvement in palliative care

I Hogstad, A Jansen - Childhood, 2020 - journals.sagepub.com
In Scandinavian countries, health professionals are legally obliged to involve patients' minor
children. A growing field of research focuses on the support to, and needs and experiences …

Talking via the child: discursively created interaction between parents and health care professionals in a pediatric oncology ward

A Ringnér, I Öster, M Björk… - Journal of Family …, 2013 - journals.sagepub.com
The aim of this study was to describe discursively constructed interactions between parents
and health care professionals (HCPs) in a pediatric oncology ward. Field notes from 70 …

Participation in communication and decision‐making: children and young people's experiences in a hospital setting

I Coyne, P Gallagher - Journal of clinical nursing, 2011 - Wiley Online Library
Aim. To explore hospitalised children and young people's experiences of participation in
communication and decision‐making. Background. There is a growing recognition …

[图书][B] Children expressing themselves

T Aasgaard, M Edwards - 2012 - books.google.com
The highly emotive context of caring for children with life-threatening illnesses can have a
significant impact on verbal communication between carers and children. There can be …

Affording opportunities to discuss deterioration in paediatric palliative care consultations: a conversation analytic study

S Ekberg, S Danby, A Herbert… - BMJ Supportive & …, 2020 - spcare.bmj.com
Objective Discussing the potential deterioration of a child who has a life-limiting condition
has recognised benefits for future care, but can be challenging in a clinical context where …

Healthcare users' experiences of communicating with healthcare professionals about children who have life-limiting conditions: a qualitative systematic review

S Ekberg, NK Bradford, A Herbert… - Journal of palliative …, 2018 - liebertpub.com
Background: Globally, an estimated eight million children could benefit from palliative care
each year. Effective communication about children with life-limiting conditions is well …

A concept analysis of children's agency within the health literature

M Montreuil, FA Carnevale - Journal of Child Health Care, 2016 - journals.sagepub.com
The capacity of children to act as agents is being increasingly recognized and has important
implications for health research and practice. However, there are various discrepancies in …