Communication about diagnosis, prognosis, and prevention in the memory clinic: perspectives of European memory clinic professionals

HMA Hendriksen, AM van Gils, AC van Harten… - Alzheimer's Research & …, 2023 - Springer
Background The paradigm shift towards earlier Alzheimer's disease (AD) stages and
personalized medicine creates new challenges for clinician-patient communication. We …

ABIDE Delphi study: topics to discuss in diagnostic consultations in memory clinics

AD Fruijtier, LNC Visser, IS Van Maurik… - Alzheimer's Research & …, 2019 - Springer
Background Information given to patients and caregivers during the clinician-patient
encounter varies considerably between memory clinic professionals. Patients and …

Clinician‐patient communication during the diagnostic workup: the ABIDE project

LNC Visser, M Kunneman, L Murugesu… - Alzheimer's & …, 2019 - Wiley Online Library
Introduction We aimed to describe clinician‐patient communication in the diagnostic process
of memory clinics, specifically clinician behavior known to facilitate knowledgeable …

What patients want to know, and what we actually tell them: the ABIDE project

AD Fruijtier, LNC Visser, FH Bouwman… - … Research & Clinical …, 2020 - Wiley Online Library
Background We studied to what degree and at whose initiative 25 informational topics,
formerly identified as important, are discussed in diagnostic consultations. Methods Audio …

Telling “the truth” in dementia—Do attitude and approach of general practitioners and specialists differ?

H Kaduszkiewicz, C Bachmann… - Patient education and …, 2008 - Elsevier
OBJECTIVE: The prevailing opinion in the literature that disclosing the diagnosis of
dementia to patients is important is not always put into practice. The purpose of this study …

Biomarker counseling, disclosure of diagnosis and follow‐up in patients with mild cognitive impairment: A European Alzheimer's disease consortium survey

KS Frederiksen, TR Nielsen… - … Journal of Geriatric …, 2021 - Wiley Online Library
Objectives Mild cognitive impairment (MCI) is associated with an increased risk of further
cognitive decline, partly depending on demographics and biomarker status. The aim of the …

Clinicians' communication with patients receiving a MCI diagnosis: the ABIDE project

LNC Visser, IS van Maurik, FH Bouwman… - PLoS …, 2020 - journals.plos.org
Background We aimed to explore clinicians' communication, including the discussion of
diagnosis, cause, prognosis and care planning, in routine post-diagnostic testing …

'How do they want to know?'Doctors' perspectives on making and communicating a diagnosis of dementia

C Bailey, J Dooley, R McCabe - Dementia, 2019 - journals.sagepub.com
Recent drives to facilitate earlier identification of dementia have led to increased memory
clinic referrals and diagnoses. This study explored the perspectives of memory clinic doctors …

Patients' and carers' views on communication and information provision when undergoing assessments in memory services

C Abley, J Manthorpe, J Bond, J Keady… - Journal of Health …, 2013 - journals.sagepub.com
Objectives To explore patients' and carers' views on what constitutes high-quality
communication and information provision during diagnostic assessment in memory clinic …

Emotional and psychological implications of early AD diagnosis

P Antoine, F Pasquier - Medical Clinics, 2013 - medical.theclinics.com
Previously, AD was diagnosed only at the late dementia stage. 1 Dementia was defined as a
syndrome of progressive decline from a prior level of functioning, in memory and in one or …