[HTML][HTML] Meaning making and religious engagement among survivors of childhood brain tumors and their caregivers

E Rabelais, NL Jones, CM Ulrich… - Oncology nursing …, 2019 - ncbi.nlm.nih.gov
PURPOSE: To describe how adolescent and young adult survivors and their mother-
caregivers ascribe meaning to their post-brain tumor survivorship experience, with a focus …

[HTML][HTML] Exploring spirituality in family caregivers of patients with primary malignant brain tumors across the disease trajectory

AG Newberry, CWJ Choi, HS Donovan… - Oncology Nursing …, 2013 - ncbi.nlm.nih.gov
Exploring Spirituality in Family Caregivers of Patients With Primary Malignant Brain Tumors
Across the Disease Trajectory - PMC Back to Top Skip to main content NIH NLM Logo Access …

Adolescent and young adult survivors of childhood brain tumors: Life after treatment in their own words

WL Hobbie, S Ogle, M Reilly, L Barakat… - Cancer …, 2016 - journals.lww.com
Background: To date, there are few studies that examine the perspectives of older survivors
of childhood brain tumors who are living with their families in terms of their sense of self and …

A quest for meaning: A qualitative exploration among children with advanced cancer and their parents

MR Schaefer, AE Kenney, AC Himelhoch… - Psycho …, 2021 - Wiley Online Library
Objective Meaning‐making may assist individuals in adaptation to stressful life events,
particularly bereavement. However, few studies have examined meaning‐making among …

Childhood brain cancer and its psychosocial impact on survivors and their parents: A qualitative thematic synthesis

RL Woodgate, K Tailor, R Yanofsky… - European Journal of …, 2016 - Elsevier
Purpose The multiple late-effects experienced by survivors of childhood brain tumors, are
not only a source of great distress for survivors, but also for their parents and siblings. The …

Expectations for function and independence by childhood brain tumors survivors and their mothers

E Rabelais, LP Barakat, NL Jones, CM Ulrich… - Narrative Inquiry in …, 2014 - muse.jhu.edu
Survivors of childhood brain tumors face many obstacles to living independently as adults.
Causes for lack of independence are multifactorial and generally are investigated in terms of …

Existential distress among caregivers of patients with brain tumors: a review of the literature

AJ Applebaum, M Kryza-Lacombe… - Neuro-oncology …, 2016 - academic.oup.com
Background Attention to existential needs is a component of comprehensive oncologic care,
and understanding these needs among informal caregivers of patients with brain tumors is …

Constructing the meaning of survivor with former pediatric brain tumor patients

A Zwiers, C Campbell, M Evans… - Journal of Pediatric …, 2015 - journals.sagepub.com
Although the term survivor is frequently used in cancer discourse, the meaning of survivor
and how people identify with this term can be difficult to understand. The purpose of this …

[HTML][HTML] Experiences and Unmet Needs of Adolescent and Young Adult Survivors of a Brain Tumor (Aged 15–39 Years): A Systematic Review and Meta-ethnography

K Law, I Salam, MG McCabe, SN van der Veer… - Cancer …, 2022 - journals.lww.com
Background Brain tumors account for 15% of all adolescent and young adult cancers, and
survivors are at risk of ongoing late effects that can severely impact their ability to reach …

Mother-caregiver expectations for function among survivors of childhood brain tumors

MS Lucas, LP Barakat, CM Ulrich, NL Jones… - Supportive Care in …, 2016 - Springer
Purpose Children diagnosed with brain tumors increasingly survive to adulthood, although
they do so with needs often requiring continued parental caregiving. We sought to describe …