Collating the voice of people with autoimmune diseases: Methodology for the Third Phase of the COVAD Studies
Introduction The growing recognition of holistic patient care highlights the various factors
shaping the quality of life of individuals with autoimmune and rheumatic diseases (AIRDs) …
shaping the quality of life of individuals with autoimmune and rheumatic diseases (AIRDs) …
Selecting patient-reported outcome measures of health-related quality of life in adult rheumatology: quality and breadth of coverage
Patient-centered research should assess outcomes important to patients and include patient-
reported outcome measures (PROMs) to assess health-related quality of life (HRQOL) …
reported outcome measures (PROMs) to assess health-related quality of life (HRQOL) …
Listening to patients, for the patients: The COVAD Study—Vision, organizational structure, and challenges
M Joshi, N Darooka, S Saha, S Dyball… - International Journal …, 2024 - Wiley Online Library
Background The pandemic presented unique challenges for individuals with autoimmune
and rheumatic diseases (AIRDs) due to their underlying condition, the effects of …
and rheumatic diseases (AIRDs) due to their underlying condition, the effects of …
Living well with multiple autoimmune diseases: An interpretive description
E Cey - 2013 - harvest.usask.ca
Autoimmune diseases (ADs) are a classification of chronic of illnesses in which the immune
system mistakes healthy cells for foreign invaders and attacks the body's own tissues or …
system mistakes healthy cells for foreign invaders and attacks the body's own tissues or …
POS0333 DETERMINANTS OF RESIDUAL PAIN IN PATIENTS WITH AUTOIMMUNE RHEUMATIC DISEASES IN REMISSION: A LATENT CLASS ANALYSIS FROM …
I Hmamouchi, N Ziade, B Salameh, M Moussallem… - 2024 - ard.bmj.com
Background: Pain plays an essential role in therapeutic decision-making in autoimmune
rheumatic diseases (AIRDs). However, it may persist in patients in disease remission, thus …
rheumatic diseases (AIRDs). However, it may persist in patients in disease remission, thus …
OMERACT quality-adjusted life-years (QALY) working group: do current QALY measures capture what matters to patients?
L Trenaman, A Boonen, F Guillemin… - The Journal of …, 2017 - jrheum.org
Objective. To understand the limitations with current patient-reported outcome measures
(PROM) used to generate quality-adjusted life-years (QALY) in rheumatology, and set a …
(PROM) used to generate quality-adjusted life-years (QALY) in rheumatology, and set a …
Stakeholder Development of an Online Program to Track Arthritis‐Related Patient‐Reported Outcomes Longitudinally: Live Yes! INSIGHTS
KE Schifferdecker, RL Butcher, E Knight… - ACR open …, 2020 - Wiley Online Library
Objective Patient‐reported outcome measures (PROMs) are increasingly used in clinical
settings but may not provide benefits to patients outside of health encounters. The Arthritis …
settings but may not provide benefits to patients outside of health encounters. The Arthritis …
POS0182 SELF-MONITORING PRACTICES AND USE OF SELF-MONITORING TECHNOLOGIES IN PEOPLE WITH RHEUMATIC AND MUSCULOSKELETAL …
Background: Rheumatic and Musculoskeletal Diseases (RMDs) impact a population
exceeding 120 million individuals within Europe and necessitate regular medical follow-up …
exceeding 120 million individuals within Europe and necessitate regular medical follow-up …
Measuring what matters: a qualitative study of the relevance and clinical utility of PROMIS surveys in systemic lupus erythematosus
S Kasturi, EL Ahearn, A Batterman, R Horton… - The Journal of …, 2024 - jrheum.org
Objective To evaluate the relevance and clinical utility of the Patient-Reported Outcomes
Measurement Information System (PROMIS) surveys in patients with systemic lupus …
Measurement Information System (PROMIS) surveys in patients with systemic lupus …
Using big data from real-world Australian rheumatology encounters to enhance clinical care and research.
GO Littlejohn, KE Tymms, T Smith… - Clinical and …, 2019 - europepmc.org
OBJECTIVES: OPAL (Optimising Patient outcomes in Australian rheumatoLogy)
Rheumatology is an independent not for profit Australian clinical research organisation …
Rheumatology is an independent not for profit Australian clinical research organisation …