Background: Interviews with bereaved family carers to examine the end-of-life experience of
the deceased are important tools for palliative care researchers, but the ethics of …

Background: Motor Neurone Disease (MND) is a neurodegenerative disease with a sudden
onset, a rapid progression, a profile of complex disabilities and fatal consequences. Caring …

Objective: Conducting research with the bereaved presents an immediate ethical challenge,
as they are undoubtedly a vulnerable group, associated with high levels of distress and …

Studies the impact of post-bereavement interviews in the assessment of the impact of death
and dying of a patients on caregivers. Implications of views that such interviews are either …

Background Research suggests that there may be bereavement experiences and support
needs which are specific to family caregivers providing end of life care (EoLC), although this …

Background: Bereaved relatives are considered to be a vulnerable group and there is
debate as to whether it is ethical to engage them in research at a time that can be difficult for …

Objectives: To determine what questions family caregivers want to discuss with health care
providers (HCPs) in order to prepare for the death of a loved one. Methods: Ethnographic …

Background: An essential component of palliative care (PC) is providing psychological and
existential support to the family caregivers. However, there is scant research on the …

Background Increasingly, people with neurodegenerative illness are cared for at home until
close to death. Yet, discussing the reality of dying remains a social taboo. Objective To …

Background Family caregiving in the context of advanced disease in particular, can be
physically and emotionally taxing. Caregivers can subsequently face bereavement …