Conversations about end-of-life decisions in neonatology: do doctors and parents implement shared decision-making?

ES Schouten, MF Beyer, AW Flemmer… - Frontiers in …, 2022 - frontiersin.org
Introduction: Advances in perinatal medicine have contributed to significantly improved
survival of newborns. While some infants die despite extensive medical treatment, a larger …

“We absolutely had the impression that it was our decision”—a qualitative study with parents of critically ill infants who participated in end-of-life decision making

MF Beyer, K Kuehlmeyer, P Mang, AW Flemmer… - Children, 2022 - mdpi.com
Background: Guidelines recommend shared decision making (SDM) between
neonatologists and parents when a decision has to be made about the continuation of life …

What hinders and helps in the end‐of‐life decision‐making process for children: Parents' and physicians' views

IH Zaal‐Schuller, R Geurtzen, DL Willems… - Acta …, 2022 - Wiley Online Library
Aim To investigate the main factors which facilitate or hinder end‐of‐life decision‐making
(EoLDM) in neonates and children. Methods A qualitative inductive, thematic analysis was …

Review on neonatal end-of-life decision-making: medical authority or parental autonomy?

TAP Nguyen, LY Ho - Proceedings of Singapore Healthcare, 2013 - journals.sagepub.com
As advances in medical technology are constantly re-defining the lower limit of newborn
viability, the practice of withholding/withdrawing treatment in neonatal care is increasingly …

Consultation of parents and healthcare professionals in end-of-life decision-making for neonates and infants: a population-level mortality follow-back physician survey

L Dombrecht, F Cools, J Cohen, L Deliens, L Goossens… - BMC pediatrics, 2022 - Springer
Background End-of-life decisions with potential life-shortening effect in neonates and infants
are common. We aimed to evaluate how often and in what manner neonatologists consult …

Initiating end-of-life decisions with parents of infants receiving neonatal intensive care

C Shaw, K Connabeer, P Drew, K Gallagher… - Patient education and …, 2020 - Elsevier
Objective To investigate whether parent-initiated or doctor-initiated decisions about limiting
life-sustaining treatment (LST) in neonatal care has consequences for how possible courses …

Talking with parents about end-of-life decisions for their children

MA de Vos, AP Bos, FB Plötz, M van Heerde… - …, 2015 - publications.aap.org
BACKGROUND AND OBJECTIVE: Retrospective studies show that most parents prefer to
share in decisions to forgo life-sustaining treatment (LST) from their children. We do not yet …

End‐of‐life decision making in neonates and infants: comparison of the Netherlands and Belgium (Flanders)

AM Vrakking, A Van Der Heide, V Provoost… - Acta …, 2007 - Wiley Online Library
Aim: We compared the results of two recent studies on end‐of‐life decisions (ELDs) for
neonates and infants in Belgium (Flanders) and the Netherlands. Methods: Questionnaires …

Uncertainty and probability in neonatal end-of-life decision-making: analysing real-time conversations between healthcare professionals and families of critically ill …

R Limacher, JC Fauchère, D Gubler, MJ Hendriks - BMC Palliative Care, 2023 - Springer
Background A significant number of critically ill neonates face potentially adverse prognoses
and outcomes, with some of them fulfilling the criteria for perinatal palliative care. When …

The process of end-of-life decision-making in pediatrics: a national survey in the Netherlands

MA De Vos, A van der Heide, H Maurice-Stam… - …, 2011 - publications.aap.org
OBJECTIVE: The goal of this study was to investigate how Dutch pediatric specialists reach
end-of-life decisions, how they involve parents, and how they address conflicts. METHODS …