Abstract Background The Scleroderma Patient-centered Intervention Network (SPIN)
developed an online self-management program (SPIN-SELF) designed to improve disease …

Abstract Background Systemic sclerosis (scleroderma; SSc) is a rare autoimmune
connective tissue disease. We completed an initial feasibility trial of an online self …

Background: Systemic sclerosis (SSc), or scleroderma, is a rare disease that often results in
significant disruptions to activities of daily living and can negatively affect physical and …

Abstract Objectives The Scleroderma Patient-centered Intervention Network (SPIN) Cohort is
a web-based cohort designed to collect patient-reported outcomes at regular intervals as a …

Objectives The Scleroderma Patient-centered Intervention Network—Scleroderma Support
group Leader EDucation (SPIN-SSLED) Programme was designed to improve confidence …

Introduction Psychosocial and rehabilitation interventions are increasingly used to attenuate
disability and improve health-related quality of life (HRQL) in chronic diseases, but are …

Objective Self‐management programs for patients with chronic illnesses, including
rheumatic diseases, seek to enhance self‐efficacy for performing health management …

Background Some people with rare diseases rely on peer-led support groups for disease-
specific education and emotional and practical support. Systemic sclerosis (SSc), or …

Systemic sclerosis (SSc), or scleroderma, is a chronic multisystem autoimmune disorder
characterised by thickening and fibrosis of the skin and by the involvement of internal organs …

Objectives The Scleroderma Patient-centered Intervention Network (SPIN) Cohort uses the
cohort multiple randomised controlled trial design to embed trials of online self-care …