Although a few jurisdictions around the world have legislated in response to the
phenomenon of biobanking, the far more common response has been policy led with …

The inspiration and impetus for this special issue on ''Biobanking''came after over a decade
of real world experience by the editors in the funding, building, and roll-out of biobanks …

This chapter examines the crucial issue of how to include people well in biobank
governance. We use the example of UK Biobank to illustrate our discussion because it is …

Rapid technological advances, the establishment of large-scale biobanks, and the
exchange of data across international boundaries raise a variety of questions for regulators …

The great interest in biobanks, the related, substantial investments, and the expectations
connected with them raises the question of how to explain the relative successes and …

Biobanks are proliferating rapidly worldwide because they are powerful tools and
organisational structures for undertaking medical research. By linking samples to data on …

The huge potential of biobanks/genetic databases for the research community has been
recognised across jurisdictions in both publicly funded and commercial sectors. But …

Good biobank governance implies—at a minimum—transparency and accountability and
the implementation of oversight mechanisms. While the biobanking community is in general …

Biobanks are increasingly hailed as powerful tools to advance health research. The social
and ethical challenges associated with the implementation and operation of biobanks are …

Biobanks are controversial due to their ethical, legal, and social implications. Recent
discussion has highlighted a central role for governance in helping to address these …