A global gold standard framework for primary immunodeficiency (PID) care, structured
around six principles, was published in 2014. To measure the implementation status of …

Abstract Background The “Primary Immunodeficiencies (PIDs) principles of care” were
published in 2014 as the gold standard for care of patients with PIDs, setting a common goal …

Objective To analyze the implementation of the Principles of Care (PoC) in primary
immunodeficiencies (PID) in Southeast Asia (SEA) countries-six years after its call of action …

Introduction During the last 4 decades, registration of patients with primary
immunodeficiencies (PID) has played an essential role in different aspects of these diseases …

This is the second report of the United Kingdom Primary Immunodeficiency (UKPID) registry.
The registry will be a decade old in 2018 and, as of August 2017, had recruited 4758 …

Primary immunodeficiencies (PIDs) are heterogeneous disorders, characterized by variable
clinical and immunological features. National PID registries offer useful insights on the …

This report summarizes the establishment of the first national online registry of primary
immune deficency in the United Kingdom, the United Kingdom Primary Immunodeficiency …

Traditionally the International Union of Immunological Societies (IUIS) Expert Committee on
Primary Immunodeficiency has revised the classification of primary immunodeficiency …

Background: The Asia Pacific Society for Immunodeficiencies (APSID) conducted nine
primary immunodeficiency (PID) Schools in 5 years since inauguration to provide PID care …

Background Primary immunodeficiencies (PI), which include more than 450 single-gene
inborn errors of immunity and may affect up to 1% of the population, are genetic disorders …