“I wanna live and not think about the future” what place for advance care planning for people living with severe multiple sclerosis and their families? A qualitative study
J Koffman, C Penfold, L Cottrell, B Farsides, CJ Evans… - 2022 - sussex.figshare.com
Background Little is known about how people with multiple sclerosis (MS) and their families
comprehend advance care planning (ACP) and its relevance in their lives. Aim To explore …
comprehend advance care planning (ACP) and its relevance in their lives. Aim To explore …
[HTML][HTML] “I wanna live and not think about the future” what place for advance care planning for people living with severe multiple sclerosis and their families? A …
J Koffman, C Penfold, L Cottrell, B Farsides, CJ Evans… - Plos one, 2022 - journals.plos.org
Background Little is known about how people with multiple sclerosis (MS) and their families
comprehend advance care planning (ACP) and its relevance in their lives. Aim To explore …
comprehend advance care planning (ACP) and its relevance in their lives. Aim To explore …
[PDF][PDF] Full Title:“I wanna live and not think about the future” What place for advance care planning for people living with severe multiple sclerosis and their families? A …
J Koffman, C Penfold, L Cottrell, B Farsides, CJ Evans… - researchgate.net
Background: Little is known about how people with multiple sclerosis and their families
comprehend advance care planning (ACP) and its relevance in their lives. Aim: To explore …
comprehend advance care planning (ACP) and its relevance in their lives. Aim: To explore …
[HTML][HTML] A realist review of advance care planning for people with multiple sclerosis and their families
L Cottrell, G Economos, C Evans, E Silber, R Burman… - PLoS …, 2020 - journals.plos.org
Background Advance care planning (ACP) is reported to improve the quality of outcomes of
care among those with life-limiting conditions. However, uptake is low among people living …
care among those with life-limiting conditions. However, uptake is low among people living …
[HTML][HTML] Cover Story–Planning for Future Care
T Garry, BA Hendin - mymsaa.org
“I don't want to become a burden to my family” is a frequent concern voiced by people with
multiple sclerosis (MS). In addition to worries about current symptoms and the physical toll …
multiple sclerosis (MS). In addition to worries about current symptoms and the physical toll …
Study protocol on advance care planning in multiple sclerosis (ConCure-SM): intervention construction and multicentre feasibility trial
L De Panfilis, S Veronese, M Bruzzone, M Cascioli… - BMJ open, 2021 - bmjopen.bmj.com
Introduction Multiple sclerosis (MS) is the most common cause of progressive neurological
disability in young adults. The use of advance care planning (ACP) for people with …
disability in young adults. The use of advance care planning (ACP) for people with …
The importance of the patient's perspective in decision-making in multiple sclerosis: Results of the OwnMS patient perspectives study
J Florio-Smith, M Ayer, S Colhoun, N Daykin… - Multiple Sclerosis and …, 2023 - Elsevier
Background Research is needed to identify the unmet disease education and
communication needs of people with multiple sclerosis (PwMS) to support informed decision …
communication needs of people with multiple sclerosis (PwMS) to support informed decision …
Construction of a resource for advance care planning in multiple sclerosis (ConCure-SM): Results of cognitive debriefing with users
L De Panfilis, S Veronese, L Ghirotto… - Journal of the …, 2021 - jns-journal.com
Methods An inter-disciplinary panel translated and adapted to the Italian legislation and to
the MS context a booklet developed by the National ACP programme for New Zealand. The …
the MS context a booklet developed by the National ACP programme for New Zealand. The …
Addressing the care and information needs of people living with advanced multiple sclerosis
C Winchester, A Whittam - British Journal of Neuroscience …, 2024 - magonlinelibrary.com
It is estimated that around 40000 people in the UK live with advanced multiple sclerosis
(MS). These individuals experience a range of symptoms, and can often have moderate to …
(MS). These individuals experience a range of symptoms, and can often have moderate to …
Advance care planning in multiple sclerosis: reflections of a palliative care physician
L Petersen - British Journal of Neuroscience Nursing, 2021 - magonlinelibrary.com
Multiple sclerosis (MS) has a long illness trajectory punctuated by serious acute events, with
a later stage that is often accompanied by cognitive impairment. There is ample time for …
a later stage that is often accompanied by cognitive impairment. There is ample time for …