Perspectives of childhood cancer survivors as young adults: a qualitative study of illness education resources and unmet information needs

E Billman, SM Smith, SL Jain - Journal of Cancer Education, 2023 - Springer
This study investigates the resources used by childhood cancer survivors (CCS) to learn
about their cancer histories and evaluates if CCS feel these resources prepare them to …

Young adult cancer survivors' experience with cancer treatment and follow-up care and perceptions of barriers to engaging in recommended care

CJ Berg, E Stratton, N Esiashvili, A Mertens - Journal of Cancer Education, 2016 - Springer
We examined correlates of low engagement in the healthcare system, experiences with
survivorship care, barriers to follow-up care, and potential resources for promoting follow-up …

[PDF][PDF] Adolescent and young adult perceptions of cancer survivor care and supportive programming

K Wasilewski-Masker, J Gilleland-Marchak… - J Community Support …, 2016 - cdn.mdedge.com
Background Improvements in cancer therapy have led to an increasing number of
adolescent and young adult (AYA) survivors of childhood cancers. Many survivors have …

“It made me the person I am today…”: survivors of childhood, adolescent, and young adult cancer reflect on their experiences

DM Steinberg, RA Santiago… - Journal of Adolescent …, 2020 - liebertpub.com
Purpose: As survival rates of childhood, adolescent, and young adult (YA) cancers improve,
there is a growing population of YA cancer survivors who can provide insight into the lived …

“You're too young for this”: adolescent and young adults' perspectives on cancer survivorship

EE Kent, C Parry, MJ Montoya, LS Sender… - Journal of …, 2012 - Taylor & Francis
Adolescent and young adult cancer survivors face unique challenges not systematically
addressed by cancer clinicians. Four focus groups and two individual interviews were …

[HTML][HTML] Adult childhood cancer survivors' narratives of managing their health: the unexpected and the unresolved

AF Howard, K Goddard, J Tan de Bibiana… - Journal of Cancer …, 2016 - Springer
Purpose Currently, 80% of children diagnosed with cancer will be cured. However, many of
these survivors go on to develop long-term health problems or late effects related to their …

Preparing childhood cancer survivors for transition to adult care: the young adult perspective

NN Frederick, SL Bober, L Berwick… - Pediatric Blood & …, 2017 - Wiley Online Library
Abstract Background Childhood cancer survivors (CCSs) remain at risk for developing
treatment‐associated health conditions as they age; however, many do not obtain …

Providers' perspectives of survivorship care for young adult survivors of childhood cancer

C Berg, E Stratton, N Esiashvili, A Mertens… - Journal of Cancer …, 2016 - Springer
We examined healthcare providers' perceptions of the goals of survivorship care and
survivor programs, systems-level barriers and individual patient-level barriers to engaging …

Barriers and facilitators of risk‐based health care for adult survivors of childhood cancer: a report from the Childhood Cancer Survivor Study

JS Ford, ES Tonorezos, AC Mertens, MM Hudson… - Cancer, 2020 - Wiley Online Library
Background Optimal risk‐based survivor health care includes surveillance for late effects
and education targeted at reducing or preventing risky health behaviors. Understanding the …

Attendance at a survivorship clinic: impact on knowledge and psychosocial adjustment

JS Ford, JF Chou, CA Sklar - Journal of Cancer Survivorship, 2013 - Springer
Purpose Due to their heightened risk of developing late-occurring adverse outcomes,
pediatric cancer survivors are advised to receive follow-up care in specialized Survivor …