Living beyond loss: a qualitative investigation of caregivers' experiences after the death of their relatives with amyotrophic lateral sclerosis
E Volpato, P Banfi, V Poletti… - … Lateral Sclerosis and …, 2024 - Taylor & Francis
Abstract Background Caregivers of Amyotrophic Lateral Sclerosis (ALS) patients experience
varying psychological responses following the patient's death, including sadness …
varying psychological responses following the patient's death, including sadness …
The family experience of living with a person with amyotrophic lateral sclerosis: a qualitative study
S Cipolletta, L Amicucci - International Journal of Psychology, 2015 - Wiley Online Library
Living with a person with amyotrophic lateral sclerosis (ALS) is a complex and difficult
experience. Most research involves only the primary caregiver and uses a quantitative …
experience. Most research involves only the primary caregiver and uses a quantitative …
Impact of disease, cognitive and behavioural factors on caregiver outcome in amyotrophic lateral sclerosis
TJ Watermeyer, RG Brown, KCL Sidle… - … Lateral Sclerosis and …, 2015 - Taylor & Francis
Up to 50% of patients with amyotrophic lateral sclerosis (ALS) show mild to moderate
cognitive-behavioural change alongside their progressive functional impairment. This study …
cognitive-behavioural change alongside their progressive functional impairment. This study …
Struggling to find meaning in life among spouses of people with ALS
AO Ozanne, UH Graneheim, S Strang - Palliative & supportive care, 2015 - cambridge.org
Objective: The aim of this study was to illuminate experiences of finding meaning in life
among spouses of people with amyotrophic lateral sclerosis. Method: Thirteen interviews …
among spouses of people with amyotrophic lateral sclerosis. Method: Thirteen interviews …
Bereavement and support experiences of informal caregivers of persons with amyotrophic lateral sclerosis: a qualitative study
C Poppe, LM Iseli, M Verwey… - … of social work in end-of …, 2022 - Taylor & Francis
Informal caregivers provide the major part of care for persons with amyotrophic lateral
sclerosis (ALS), a terminal neurodegenerative disease. Apart from providing care, informal …
sclerosis (ALS), a terminal neurodegenerative disease. Apart from providing care, informal …
[HTML][HTML] Caregivers' view of socio-medical care in the terminal phase of amyotrophic lateral sclerosis—How can we improve holistic care in ALS?
K Linse, E Aust, R Günther, A Hermann - Journal of Clinical Medicine, 2022 - mdpi.com
Multidimensional socio-medical care with an early integration of palliative principles is
strongly recommended in amyotrophic lateral sclerosis (ALS), but provided inconsistently …
strongly recommended in amyotrophic lateral sclerosis (ALS), but provided inconsistently …
The quality of life and depression in primary caregivers of patients with amyotrophic lateral sclerosis is affected by patient-related and culture-specific conditions
A Maksymowicz-Śliwińska, D Lulé… - … Lateral Sclerosis and …, 2023 - Taylor & Francis
Objective: To analyze the quality of life (QoL) and frequency of depression in primary
caregivers of patients with amyotrophic lateral sclerosis (ALS) in two neighboring European …
caregivers of patients with amyotrophic lateral sclerosis (ALS) in two neighboring European …
Coping strategies and psychological distress in caregivers of patients with amyotrophic lateral sclerosis (ALS)
M Siciliano, G Santangelo, F Trojsi… - … Lateral Sclerosis and …, 2017 - Taylor & Francis
Background: Amyotrophic lateral sclerosis (ALS) causes distress in caregivers. The present
study aims to examine the association between coping strategies and psychological distress …
study aims to examine the association between coping strategies and psychological distress …
Care burden and related factors among informal caregivers of patients with amyotrophic lateral sclerosis
Objective: Amyotrophic lateral sclerosis (ALS) affects the life of the family caregiver as well
as the patient. This study aimed to determine the care burden and related factors among …
as the patient. This study aimed to determine the care burden and related factors among …
Life factors affecting depression and burden in amyotrophic lateral sclerosis caregivers
K Qutub, D Lacomis, SM Albert… - … Lateral Sclerosis and …, 2014 - Taylor & Francis
Our objective was to determine which factors contribute to depression symptoms or
increased burden in caregivers of amyotrophic lateral sclerosis (ALS) patients. The five …
increased burden in caregivers of amyotrophic lateral sclerosis (ALS) patients. The five …