Specialized pediatric palliative home care: a prospective evaluation

G Groh, GD Borasio, C Nickolay… - Journal of palliative …, 2013 - liebertpub.com
Abstract Objectives: In Germany since 2007 children with advanced life-limiting diseases are
eligible for Pediatric Palliative Home Care (PPHC), which is provided by newly established …

Effectiveness of a pediatric palliative home care team as experienced by parents and health care professionals

R Vollenbroich, A Duroux, M Grasser… - Journal of palliative …, 2012 - liebertpub.com
Objectives: Little data are available on palliative home care for children. The objective of this
study was to evaluate the effectiveness of a specialized pediatric palliative home care team …

Specialized home palliative care for adults and children: differences and similarities

G Groh, B Feddersen, M Führer… - Journal of palliative …, 2014 - liebertpub.com
Objective: To compare the provision of specialized home palliative care (SHPC) by the adult
and pediatric SHPC teams at the Munich University Hospital. Methods: All patients treated …

[HTML][HTML] “Let's bring her home first.” Patient characteristics and place of death in specialized pediatric palliative home care

HU Bender, MB Riester, GD Borasio… - Journal of pain and …, 2017 - Elsevier
Context Specialized pediatric palliative home care (SPPHC) is the main pediatric palliative
care structure in Germany. Detailed data on patient characteristics and care are sparse …

[HTML][HTML] Developing a family-reported measure of experiences with home-based pediatric palliative and hospice care: a multi-method, multi-stakeholder approach

JY Boyden, C Feudtner, JA Deatrick, K Widger… - BMC palliative …, 2021 - Springer
Background Many children with serious illnesses are receiving palliative and end-of-life care
from pediatric palliative and hospice care teams at home (PPHC@ Home). Despite the …

[HTML][HTML] Family experiences with palliative care for children at home: a systematic literature review

A Winger, LG Kvarme, B Løyland, C Kristiansen… - BMC palliative …, 2020 - Springer
Background The main goal of pediatric palliative care (PPC) is to improve or maintain the
best possible quality of life (QoL) for the child and their family. PPC can be provided in …

Home-based specialized pediatric palliative care: a systematic review and meta-analysis

NM Hammer, PE Bidstrup, J Brok, M Devantier… - Journal of pain and …, 2023 - Elsevier
Context Although specialized pediatric palliative care (SPPC) teams increasingly provide
home-based care, the evidence of its impact has not yet been systematically evaluated …

[HTML][HTML] Concerns of parents with children receiving home-based pediatric palliative care

PR Tutelman, KG Lipak, A Adewumi, MZ Fults… - Journal of pain and …, 2021 - Elsevier
Context Caring for a child who will die from a life-limiting illness is one of the most difficult
experiences a parent may face. Pediatric palliative care (PPC) has grown as a specialty …

Parents' experiences of paediatric palliative care in the community healthcare system: a qualitative study

SA Rud, E Skagestad… - Palliative Care and …, 2023 - journals.sagepub.com
Background: Having a child with a life-limiting illness is a situation that is relatively rare and
represents a multidimensional burden on the family. Paediatric palliative care (PPC) aims to …

[HTML][HTML] Paediatric palliative care improves patient outcomes and reduces healthcare costs: evaluation of a home-based program

PH Chong, JA De Castro Molina, K Teo, WS Tan - BMC palliative care, 2018 - Springer
Background Around the world, different models of paediatric palliative care have responded
to the unique needs of children with life shortening conditions. However, research …