Background The aim of this project was to identify the top 10 priorities for childhood chronic
conditions and disability (CCD) research from the perspectives of children and young …

Objectives To engage young people, parent carers and clinicians in a systematic process to
identify and prioritise research questions regarding ways to improve the health and well …

Aim The rising number of children carrying chronic disease with them into adulthood
presents the research community with an obligation to address their unique needs …

Background Chronic conditions are the leading cause of mortality, morbidity and disability in
children. However, children and caregivers are rarely involved in identifying research …

Priority-setting is a collective responsibility centred around inclusive engagement and
alignment with the needs and desired outcomes of the community. In this study, we …

Objectives To engage children and young people with conditions that impair learning, their
parents/carers and the health, education, social work and third sector professionals to …

Aim To identify research priorities regarding the effectiveness of interventions for children
and young people (CYP) with childhood neurological conditions (CNCs). These include …

Background: In planning high-quality research in any aspect of care for children and young
people with life-limiting conditions, it is important to prioritise resources in the most …

Abstract Service provision for children and young people who are looked after should be
evidence based, as far as possible, in order to improve their health and wellbeing. This …

Background Children with significant and complex health needs and/or disabilities and their
families are often in contact with a wide range of different agencies, and subject to multiple …