Objective Patient and family engagement is important for family-centered care, particularly
for children and adolescents with chronic disease. We aimed to 1) identify available …

Introduction Children with chronic conditions have greater health care needs than the
general paediatric population but may not receive care that centres their needs and …

Objective The widely applied Chronic Care Model emphasizes the need for an “informed
activated patient” and a “prepared and proactive team” to improve patient outcomes. This …

Background Patient and family engagement (PFE) has been defined as a partnership
between patients, families, and health care providers to achieve positive health care …

Objective To identify impacts of patient and family engagement in child health research on
the research process, research teams, and patient and family partners. Study design A …

Children and young people with long-term conditions are not always provided with
opportunities to engage fully in consultations. This systematic review examined the …

Background In the last decades, pediatric patient engagement has received growing
attention and its importance is increasingly acknowledged. Pediatric patient engagement in …

Objective This review aimed to (1) identify parents' learning needs and preferences when
sharing the management of their child's long-term/chronic (long-term) condition and (2) …

Community‐based family‐focused interventions can offer support to families of children with
chronic health conditions. This review aimed to evaluate the effectiveness of community …

Aim: To present the methods and outcomes of stakeholder engagement in the development
of interventions for children presenting to the emergency department (ED) for uncontrolled …