Measurement of quality of end-of-life care in children with serious illness is considered a
growing yet overlooked priority within children's healthcare (1, 2). Population-level quality …

We must ensure that the 20,000 US children (age 0 to 19 years) who die as a result of
serious illness annually receive high-quality end-of-life care. Ensuring high-quality end-of …

This study aims to evaluate the appropriateness of end-of-life care for children with genetic
and congenital conditions. This is a decedent cohort study. We used 6 linked, Belgian …

Objective To develop and face-validate population-level indicators for potential
appropriateness of end-of-life care, for children with cancer, neurologic conditions, and …

Objective The objective of this study was to measure the appropriateness of end-of-life care
for children who died with neurologic conditions. Study design Based on linked routinely …

The assessment of health-related quality of life (HRQL) among children is an area that has
seen considerable growth over the past decade. Whereas clinicians and researchers have …

BACKGROUND AND OBJECTIVES Children with complex chronic conditions (CCCs) and
their families deserve high-quality pediatric palliative care (PPC) throughout their illness …

Introduction: Incorporating real-world data using “big data” analysis in healthcare are useful
to extract specific information for healthcare delivery system improvement. All-cause …

Introduction Being responsive to end-users is essential to good care. Limited in-depth
exploration of parental perspectives on care received by children over the course of serious …

Background: The circumstances and care provided at the end of a child's life have a
profound impact on family members. Although assessing experiences and outcomes during …