What does 'good'palliative care look like for children and young people? A qualitative study of parents' experiences and perspectives

D Fields, LK Fraser, J Taylor, J Hackett - Palliative Medicine, 2023 - journals.sagepub.com
Background: Worldwide, around 21 million children would benefit from palliative care and
over 7 million babies and children die each year. Whilst provision of paediatric palliative …

Achieving beneficial outcomes for children with life-limiting and life-threatening conditions receiving palliative care and their families: a realist review

S Mitchell, K Bennett, A Morris… - Palliative …, 2020 - journals.sagepub.com
Background: Palliative care for children and young people is a growing global health
concern with significant resource implications. Improved understanding of how palliative …

Paediatric palliative care: a survey of paediatricians and family practitioners

L Straatman, T Miller - BMJ Supportive & Palliative Care, 2013 - spcare.bmj.com
Background Paediatric palliative care focuses on the enhancement of the quality of life for a
child and family through a combination of active and compassionate therapies intended to …

Enhancing paediatric palliative care: A rapid review to inform continued development of care for children with life‐limiting conditions

S Ekberg, A Bowers, N Bradford… - … of Paediatrics and …, 2022 - Wiley Online Library
Aim Following the establishment of paediatric palliative care services over recent decades,
this study sought to identify information to inform future policy and practice. Methods A rapid …

Editorial for palliative medicine

J Downing - Palliative Medicine, 2016 - journals.sagepub.com
Downing 903 along with the experiences of both caregivers and health professionals in
providing children's palliative care and in decision making, and the need for outcome …

A call to improve paediatric palliative care quality through research

L Dombrecht, A Lacerda, J Wolfe, J Snaman - BMC Palliative Care, 2023 - Springer
Paediatric palliative care is needed now more than ever. Medical and technological
advances mean that children with complex chronic conditions are surviving longer …

[图书][B] Children's palliative care: an international case-based manual

J Downing - 2020 - Springer
Children's palliative care (CPC) is an important and developing field globally. The provision
of children's palliative care varies around the world, with provision not meeting needs and …

Facilitators and barriers to the delivery of palliative care to children with life-limiting and life-threatening conditions: a qualitative study of the experiences and …

S Mitchell, AM Slowther, J Coad, S Bertaud… - Archives of Disease in …, 2022 - adc.bmj.com
Objective To understand healthcare system facilitators and barriers to the delivery of
palliative care for children with life-limiting and life-threatening conditions and their family …

Paediatric palliative care in practice: Perspectives between acute and long‐term healthcare teams

AJ Côté, A Payot, N Gaucher - Acta Paediatrica, 2020 - Wiley Online Library
Aim To explore and compare acute and long‐term care professionals' perspectives about
paediatric palliative care. Methods Focus group interviews were conducted in 2016‐2017 …

Pediatric palliative care in Canada and the United States: a qualitative metasummary of the needs of patients and families

M Stevenson, M Achille, T Lugasi - Journal of palliative medicine, 2013 - liebertpub.com
Objective: Qualitative research is becoming more common in pediatric palliative care and
end-of-life care. The present article systematically reviews and summarizes qualitative and …