Who cares for the carers? carerhelp: development and evaluation of an online resource to support the wellbeing of those caring for family members at the end of their …

J Tieman, P Hudson, K Thomas, D Saward… - BMC Palliative Care, 2023 - Springer
Background Most people living with a terminal illness and approaching death will need the
assistance of a non-professional carer such as a family member, friend, or neighbour to …

“It's alright to ask for help”: findings from a qualitative study exploring the information and support needs of family carers at the end of life

E Harrop, A Byrne, A Nelson - BMC palliative care, 2014 - Springer
Background Family carers play an essential role in providing end-of-life care to their
relatives but have been found to experience uncertainty and a lack of confidence in fulfilling …

Development of an eHealth information resource for family carers supporting a person receiving palliative care on the island of Ireland

D Scott, P Hudson, K Charnley, C Payne, G Westcott - BMC palliative care, 2019 - Springer
Background Many people receiving palliative care wish to die at home. Often, support from
family or friends is key to ensuring that this wish is fulfilled. However, carers report feeling …

White Paper on improving support for family carers in palliative care, part 2

S Payne, P Hudson, G Grande… - … of Palliative Care., 2010 - escholar.manchester.ac.uk
In part 2 of this official position paper of the European Association for Palliative Care
(EAPC), the EAPC Task Force on Family Carers outlines different types of support offered to …

Family carer support in home and hospital: a cross-sectional survey of specialised palliative care

M Vermorgen, A De Vleminck, K Leemans… - BMJ Supportive & …, 2020 - spcare.bmj.com
Objectives To evaluate:(1) to what extent family carers of people supported by specialised
palliative care services felt they had been provided with information, support and aftercare …

The development and evaluation of a multimedia resource for family carers of patients receiving palliative care: a consumer-led project

K Thomas, G Moore - Palliative & supportive care, 2015 - cambridge.org
Objective: Previous intervention research has shown that group education sessions for
carers are effective but not always feasible due to the demands of the caregiving role and …

Increasing preparedness for caregiving and death in family caregivers of patients with severe illness who are cared for at home–study protocol for a web-based …

A Alvariza, L Häger-Tibell, M Holm, G Steineck… - BMC palliative …, 2020 - Springer
Background Family caregivers of patients with severe illness and in need for a palliative
care approach, face numerous challenges and report having insufficient preparedness for …

Evaluation of an online toolkit for carers of people with a life-limiting illness at the end-of-life: health professionals' perspectives

D Parker, P Hudson, J Tieman, K Thomas… - Australian Journal of …, 2021 - CSIRO Publishing
Carers of people with a life-limiting illness report unmet information, practical, and emotional
support needs, and are often unaware of services available to help improve preparedness …

Development of a Carer Support Needs Assessment Tool (CSNAT) for end-of-life care practice at home: a qualitative study

G Ewing, G Grande… - Palliative …, 2013 - journals.sagepub.com
Background: Current end-of-life care policy and guidance recognises the important
contribution of family carers, recommending that their needs should be assessed to support …

Supporting family caregivers to identify their own needs in end-of-life care: Qualitative findings from a stepped wedge cluster trial

S Aoun, K Deas, C Toye, G Ewing… - Palliative …, 2015 - journals.sagepub.com
Introduction: The Carer Support Needs Assessment Tool encompasses the physical,
psychological, social, practical, financial, and spiritual support needs that government …