Objective This study's objective was to develop an algorithm that mapping the Haem-A-QoL
scores to EQ-5D-5L utility scores in patients with hemophilia in China. Methods A national …

Objective The aim of this study was to evaluate the psychometric properties of the EQ-5D-5L
and SF-6D, and to compare their performance among patients living with haemophilia in …

Objective: This study examined the impact of adding two condition-specific bolt-on items to
the EQ-5D-5L and assessed their psychometric properties in patients with hemophilia …

Background Hemophilia is a rare genetic condition that is often overlooked and
underdiagnosed, particularly in low-income countries. Long-term spontaneous joint …

Introduction Evaluating health‐related quality of life (HRQoL) is vital for informing the
improvement of the overall health of people with haemophilia (PwH). While there is lacking …

Background and Objectives. Health Related Quality of Life (HRQoL) is an important health
outcome measure in haemophilia. The aim of this study was to assess the psychometric …

Health‐related quality of life (HRQoL) is increasingly used as an outcome parameter in
haemophilia treatment. Currently, only generic HRQoL instruments are used, as disease …

Introduction Haemophilia is a hereditary, chronic and haemorrhagic disorder caused by a
deficiency in coagulation factors. Long-term spontaneous bleeding of joints and soft tissues …

Introduction Health‐related quality of life (HRQ oL) is reduced among persons with
haemophilia. Little is known about how HRQ oL varies with complications of haemophilia …

Introduction Patients with haemophilia on long‐acting prophylactic treatment may
experience an improvement in health‐related quality of life (HRQ oL) through reductions in …