Background A compelling ethical rationale supports patient engagement in healthcare
research. It is also assumed that patient engagement will lead to research findings that are …

Objectives Lack of clarity on the definition of “patient engagement” has been highlighted as
a barrier to fully implementing patient engagement in research. This study identified themes …

Background Over the last 10 years, patient engagement in health research has emerged as
the next evolution in healthcare research. However, limited evidence about the clear role …

Plain English summary With the growing movement to engage patients in research,
questions are being asked about who is engaging patients and how they are being …

Background Health research is evolving to include patient stakeholders (patients, families
and caregivers) as active members of research teams. Frameworks describing the …

Despite the growing demand for research that engages stakeholders, there is limited
evidence in the literature to demonstrate its value–or return on investment. This gap …

Background Showing how engagement adds value for all stakeholders can be an effective
motivator for broader implementation of patient engagement. However, it is unclear what …

Background The role of patient involvement in health research has evolved over the past
decade. Despite efforts to engage patients as partners, the role is not well understood. We …

Background Patient engagement in research is a dominant discourse in clinical research
settings as it is seen as a move toward sustainable and equitable health care systems. In …

Charged with ensuring that research produces useful evidence to inform health decisions,
the Patient-Centered Outcomes Research Institute (PCORI) requires investigators to engage …