Psychosocial Issues and Care for Patients with Systemic Sclerosis

BD Thombs, L Kwakkenbos - Scleroderma: From Pathogenesis to …, 2024 - Springer
People living with chronic medical conditions face challenges not only with respect to their
physical health but also to their emotional and social well-being. Chronic conditions, such as …

Psychosocial issues and care for patients with systemic sclerosis

LR Jewett, L Kwakkenbos, VC Delisle, B Levis… - … : from pathogenesis to …, 2017 - Springer
People living with chronic medical conditions face challenges not only with respect to their
physical health but also to their emotional and social well-being. Chronic conditions, such as …

Evaluation and management of psychosocial issues

LR Jewett, JA Haythornthwaite, BD Thombs - … : From pathogenesis to …, 2012 - Springer
People living with chronic medical conditions face challenges not only with respect to their
physical health, but also to their emotional and social well-being. Chronic conditions, such …

Psychosocial aspects of scleroderma

L Kwakkenbos, VC Delisle, RS Fox… - Rheumatic …, 2015 - rheumatic.theclinics.com
Systemic sclerosis (SSc; also called scleroderma) has far-reaching consequences for
physical health, as well as emotional and social well-being. 1–4 Because there is no known …

Psychological health and well-being in systemic sclerosis: State of the science and consensus research agenda

BD Thombs, W Van Lankveld, M Bassel, M Baron… - 2010 - escholarship.mcgill.ca
Objective: There is relatively little research on important patient-reported outcomes that
affect quality of life in systemic sclerosis (SSc) and even less research on psychological …

Quality of life in patients with systemic sclerosis compared to the general population and patients with other chronic conditions

M Hudson, BD Thombs, R Steele, P Panopalis… - The Journal of …, 2009 - jrheum.org
Objective. Systemic sclerosis (SSc) affects multiple physical, psychological, and social
domains and is associated with impaired health-related quality of life (HRQOL). We …

Psychosocial aspects of systemic sclerosis

VL Malcarne, RS Fox, SD Mills… - Current opinion in …, 2013 - journals.lww.com
There has been a recent expansion in studies of psychosocial aspects of SSc, and in the
validation of psychosocial measures that can be used in clinics to identify problems and …

Patterns of patient-reported symptoms and association with sociodemographic and systemic sclerosis disease characteristics: a scleroderma Patient-centered …

RK Wojeck, MR Knisely, DE Bailey, TJ Somers… - …, 2023 - thelancet.com
Background Systemic sclerosis is a heterogenous disease in which little is known about
patterns of patient-reported symptom clusters. We aimed to identify classes of individuals …

Impaired quality of life in patients with systemic sclerosis compared to the general population and chronic dermatoses

A Bretterklieber, C Painsi, A Avian, N Wutte… - BMC research …, 2014 - Springer
Abstract Background Systemic sclerosis (SSc) is a rare and potentially life threatening
autoimmune disorder. The burden of disease compared to other dermatoses is unknown …

Disease and symptom burden in systemic sclerosis: a patient perspective.

ME Suarez-Almazor, MA Kallen, AK Roundtree… - The Journal of …, 2007 - jrheum.org
OBJECTIVE: Studies of systemic sclerosis (SSc) have enlisted measures of physical function
and generic health-related quality of life in order to determine health status. However, the …