Meeting parents' needs for education and preparation following congenital heart disease diagnosis: recommendations from a crowdsourced study
C Gramszlo, A Karpyn, J Christofferson… - American Journal of …, 2022 - thieme-connect.com
Objective This article characterizes the educational needs of parents following fetal or
neonatal congenital heart disease (CHD) diagnosis and generates recommendations for …
neonatal congenital heart disease (CHD) diagnosis and generates recommendations for …
Uncertainty of prenatally diagnosed congenital heart disease: a qualitative study
KW Harris, KM Brelsford… - JAMA network …, 2020 - jamanetwork.com
Importance Parents who receive a prenatal diagnosis of congenital heart disease may
experience more short-and long-term stress than those who receive a postnatal diagnosis …
experience more short-and long-term stress than those who receive a postnatal diagnosis …
Parents' perspectives on decision making after antenatal diagnosis of congenital heart disease
GR Rempel, LM Cender, MJ Lynam… - Journal of Obstetric …, 2004 - Wiley Online Library
Objective: To discover and describe how prospective parents make decisions when they
learn of their baby's congenital heart disease (CHD) during pregnancy, and to provide …
learn of their baby's congenital heart disease (CHD) during pregnancy, and to provide …
How not to tell parents about their child's new diagnosis of congenital heart disease: an internet survey of 841 parents
D Hilton-Kamm, M Sklansky, RK Chang - Pediatric cardiology, 2014 - Springer
An online survey for parents of children with congenital heart disease (CHD) was developed
to study the perceptions and experiences of parents when receiving the diagnosis. The …
to study the perceptions and experiences of parents when receiving the diagnosis. The …
Supporting parenting during infant hospitalisation for CHD
C Gramszlo, A Karpyn, J Christofferson… - Cardiology in the …, 2020 - cambridge.org
Objective: To characterise the parenting priorities of mothers and fathers of infants
hospitalised with CHD and generate recommendations to support parenting during infant …
hospitalised with CHD and generate recommendations to support parenting during infant …
Fathers of children with congenital heart disease: Sources of stress and opportunities for intervention
MF Hoffman, A Karpyn, J Christofferson… - Pediatric Critical Care …, 2020 - journals.lww.com
Objectives: To examine sources of stress for fathers of children with congenital heart disease
and opportunities for intervention to prevent or reduce paternal mental health problems …
and opportunities for intervention to prevent or reduce paternal mental health problems …
[HTML][HTML] Counseling for prenatal congenital heart disease—recommendations based on empirical assessment of counseling success
A Kovacevic, A Simmelbauer, S Starystach… - Frontiers in …, 2020 - frontiersin.org
Objectives: Empirical assessment of parental needs and affecting factors for counseling
success after prenatal diagnosis of congenital heart disease (CHD). Methods: Counseling …
success after prenatal diagnosis of congenital heart disease (CHD). Methods: Counseling …
From diagnoses to ongoing journey: Parent experiences following congenital heart disease diagnoses
TS Williams, KP McDonald, SD Roberts… - Journal of Pediatric …, 2019 - academic.oup.com
Despite improved survival among children with congenital heart disease (CHD), the risk of
psychosocial difficulties remains largely unchanged with an increased emphasis of …
psychosocial difficulties remains largely unchanged with an increased emphasis of …
Parents' perspectives on counseling for fetal heart disease: what matters most?
A Kovacevic, A Wacker-Gussmann, S Bär… - Journal of Clinical …, 2022 - mdpi.com
After diagnosis of congenital heart disease (CHD) in the fetus, effective counseling is
considered mandatory. We sought to investigate which factors, including parental social …
considered mandatory. We sought to investigate which factors, including parental social …
A Psychosocial Care Model for Families Affected by Congenital Heart Disease
CFB Driscoll, J Christofferson… - Pediatric Critical Care …, 2023 - journals.lww.com
OBJECTIVES: To develop a model of family-based psychosocial care for congenital heart
disease (CHD). DESIGN: Qualitative study using crowdsourced data collected from parents …
disease (CHD). DESIGN: Qualitative study using crowdsourced data collected from parents …
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