Increased patient advocacy has resulted in a shift toward more active patient engagement in
the research. A scoping review was conducted to explore the literature on healthcare …

Objective To evaluate research priority setting approaches in childhood chronic diseases
and to describe the priorities of stakeholders including patients, caregivers/families and …

Background: Practice-based research networks (PBRNs) perform clinically relevant
research designed for immediate translation to patient care. Research questions developed …

Background Patient-oriented research (POR) aligns research with stakeholders' priorities to
improve health services and outcomes. Community-based health care settings offer an …

Importance The research agenda in pediatric hospital medicine has seldom considered the
perspectives of young people, parents and caregivers, and health care professionals. Their …

Background Prior health services research (HSR) agendas for children have been
published, but major ones are now over 15 years old and do not reflect augmented …

OBJECTIVES: In this study, we sought to establish priorities for a national research agenda
for children and youth with special health care needs (CYSHCN) through a structured …

Objective To identify practices that add value to improve the design, conduct, and reporting
of child health research and reduce research waste. Study design In order to categorize the …

Aim Patient engagement (PE) in pediatric health services research is challenging due to
contextual factors such as busyness of parenting, work schedules, and diverse family …

Objective To identify impacts of patient and family engagement in child health research on
the research process, research teams, and patient and family partners. Study design A …