What patients prioritize for research to improve their lives and how their priorities get dismissed again
B Groot, A Haveman, M Buree, R Zuijlen… - International Journal of …, 2022 - mdpi.com
Health researchers increasingly work with patients in a participatory fashion. Active patient
involvement throughout the research process can provide epistemic justice to patients who …
involvement throughout the research process can provide epistemic justice to patients who …
Studying How Patient Engagement Influences Research: A Mixed Methods Study
DA Marshall, N Suryaprakash, DC Lavallee… - The Patient-Patient …, 2024 - Springer
Background There is evidence supporting the value of patient engagement (PE) in research
to patients and researchers. However, there is little research evidence on the influence of PE …
to patients and researchers. However, there is little research evidence on the influence of PE …
Missing Persons Alert: Finding the Lost “Person” in Patient-Oriented Research
S Rao - Journal of Patient Experience, 2022 - journals.sagepub.com
After a decade of attempts at patient-oriented research, this article seeks to advance the
approach, making individuals and communities active partners in health research. Patient …
approach, making individuals and communities active partners in health research. Patient …
Using qualitative health research methods to improve patient and public involvement and engagement in research
Plain English summary Patient engagement (or patient and public involvement) in health
research is becoming a requirement for many health research funders, yet many …
research is becoming a requirement for many health research funders, yet many …
Impact on the individual: what do patients and carers gain, lose and expect from being involved in research?
J Ashcroft, T Wykes, J Taylor, A Crowther… - Journal of Mental …, 2016 - Taylor & Francis
Background: Study feasibility and deliverability can benefit from involving patients and
carers in the research process, known as patient and public involvement (PPI). There is less …
carers in the research process, known as patient and public involvement (PPI). There is less …
'We're here to listen and help them as well': a qualitative study of staff and Indigenous patient perceptions about participating in social and emotional wellbeing …
Background Research can inform culturally-appropriate care to strengthen social and
emotional wellbeing (SEWB) among Aboriginal and Torres Strait Islander (hereafter, the …
emotional wellbeing (SEWB) among Aboriginal and Torres Strait Islander (hereafter, the …
Service user reflections on the impact of involvement in research
J Gordon, S Franklin, SA Eltringham - Research involvement and …, 2018 - Springer
Plain English summary Public involvement can impact on research, on the public who give
advice, on the researchers and the research participants. Evaluating impact is an important …
advice, on the researchers and the research participants. Evaluating impact is an important …
[HTML][HTML] Patient and public involvement in mental health research: En route to maturity?
A Faulkner, M Chambers - … Journal of Public Participation in Health …, 2021 - ncbi.nlm.nih.gov
This collection of papers demonstrates a growing interest and maturity of experience within
the field of patient and public involvement utilizing a range and various forms of involvement …
the field of patient and public involvement utilizing a range and various forms of involvement …
Supporting health researchers to realize meaningful patient involvement in research: exploring researchers' experiences and needs
S Harmsen, CACM Pittens, E Vroonland… - Science and Public …, 2022 - academic.oup.com
Involving patients in health research requires a new way of working for all stakeholders
involved, including researchers. This research aimed (1) to gain deeper insight into the …
involved, including researchers. This research aimed (1) to gain deeper insight into the …
[HTML][HTML] Patients as research partners; how to value their perceptions, contribution and labor?
E Smith, JC Bélisle-Pipon, D Resnik - Citizen science: theory and …, 2019 - ncbi.nlm.nih.gov
Citizen Science refers to the consultation, participation, engagement or involvement of the
general public in research. Rationales for this interaction include increased public access …
general public in research. Rationales for this interaction include increased public access …