This study explored parents' experiences of services for children with life-limiting
neurodevelopmental disabilities (LLNDD) using mixed methods. The study included a …

Children with life-limiting neurodevelopmental disabilities are a small but unique and
important group within the paediatric population. While current policy discussions …

Background The aim of this study was to explore expert professionals' opinions on service
provision to children under six with life-limiting neurodevelopmental disabilities (LLNDD) …

Background This study explored mothers' perspectives of the experiences and impact on
themselves and their family when their child has a life‐limiting neurodevelopmental …

Background. Knowledge about the needs of parents with neurological disorders who take
care of young children is limited. Purpose. The overall aim of this qualitative study was to …

Background A crowd‐sourced Canadian platform that collects information across
neurodevelopmental disabilities (NDDs) can (1) facilitate knowledge mobilization;(2) …

Background Both child function and supports and services have been found to impact the
well‐being of parents of children with neurodevelopmental disorders (NDD). The …

Background Raising a child with a neurodevelopmental disorder or disability (NDD/D)
presents unique challenges to the family, and presence of behavior problems has been …

Background Much research has explored how raising a child with a neurodevelopmental
disability influences parents' well-being. However, little research has focused on the unique …

Having a child with neurodevelopmental disabilities has a significant impact on the well-
being of parents, including experiencing distress and enduring emotional, financial and …