Background Societal attitudes about end-of-life events are at odds with how, where, and
when children die. In addition, parents' ideas about what constitutes a “good death” in a …

Objectives To evaluate parents' perceptions of the process by which decisions are made to
limit or withdraw life support from critically ill children, and to evaluate parents' perceptions of …

Background Despite reported challenges encountered by nurses who provide palliative care
to children, few researchers have examined this phenomenon from the perspective of …

Background The quality and context of end-of-life care for children are not as well studied as
they are for adults. The components of quality care are less clear, and differences between …

OBJECTIVE. Despite recognition that dying children and their families have unique palliative
care needs, there has been little empirical inquiry of parent perspectives to improve the …

Objective: Describe the roles and respective responsibilities of PICU healthcare
professionals in end-of-life care decisions faced by PICU parents. Design: Retrospective …

Aim and objective: The aim of this study was to review the literature relating to parental
perceptions on what constitutes quality end‐of‐life care (ELC) at the time of their child's …

• Background Parents need compassionate care when an infant dies. Nurses can provide
such care and possibly facilitate grieving, yet often have inadequate preparation in …

The pediatric intensive care unit (PICU) is a high-tech setting aimed at restoring health to
critically ill children. When childhood death occurs in the PICU, it constitutes a special …

Objectives To provide an in-depth insight into the experience and perceptions of bereaved
parents who have experienced end of life care decision-making for children with life-limiting …