All in the blood: A review of Aboriginal Australians' cultural beliefs about blood and implications for biospecimen research

E Kowal, A Greenwood… - Journal of Empirical …, 2015 - journals.sagepub.com
Public participation in medical research and biobanking is considered key to advances in
scientific discovery and translation to improved health care. Cultural concerns relating to …

[HTML][HTML] From biocolonialism to emancipation: considerations on ethical and culturally respectful omics research with indigenous Australians

GH Soares, J Hedges, S Sethi, B Poirier… - Medicine, Health Care …, 2023 - Springer
As part of a (bio) colonial project, the biological information of Indigenous Peoples has
historically been under scientific scrutiny, with very limited benefits for communities and …

[HTML][HTML] The picture talk project: starting a conversation with community leaders on research with remote aboriginal communities of Australia

EFM Fitzpatrick, G Macdonald, ALC Martiniuk… - BMC medical …, 2017 - Springer
Background Researchers are required to seek consent from Indigenous communities prior
to conducting research but there is inadequate information about how Indigenous people …

Orphan DNA: Indigenous samples, ethical biovalue and postcolonial science

E Kowal - Social Studies of Science, 2013 - journals.sagepub.com
Thousands of blood samples taken from Australia's indigenous people lie in institutional
freezers of the global North, the legacy of a half-century of scientific research. Since those …

Research with Aboriginal peoples: Authentic relationships as a precursor to ethical research

JR Bull - Journal of Empirical Research on Human Research …, 2010 - journals.sagepub.com
Recent ethics guidelines and policies are changing the way health research is understood,
governed, and practiced among Aboriginal communities in Canada. This provides a unique …

Public health research involving aboriginal peoples: research ethics board stakeholders' reflections on ethics principles and research processes

S Flicker, CA Worthington - Canadian Journal of Public Health, 2012 - Springer
Objectives The second edition (2010) of the Tri-Council Policy Statement on Ethical Conduct
for Research Involving Humans (TCPS2) prescribes a set of principles and provisions for …

Indigenous blood and ethical regimes in the United States and Australia since the 1960s

J Radin, E Kowal - American Ethnologist, 2015 - Wiley Online Library
Blood samples collected from members of indigenous communities in the mid‐20th century
by scientists interested in human variation remain frozen today in institutional repositories …

Genetic research and aboriginal and torres strait Islander Australians

E Kowal, G Pearson, CS Peacock, SE Jamieson… - Journal of Bioethical …, 2012 - Springer
While human genetic research promises to deliver a range of health benefits to the
population, genetic research that takes place in Indigenous communities has proven …

Combatting neo-colonialism in health research: what can aboriginal health research ethics and global health research ethics teach each other?

A Harper, B Pratt - Journal of Empirical Research on Human …, 2022 - journals.sagepub.com
The ethics of research involving Aboriginal populations and low and middle-income country
populations each developed out of a long history of exploitative research projects and …

Good gifts for the common good: Blood and bioethics in the market of genetic research

DS Reddy - Cultural Anthropology, 2007 - Wiley Online Library
This article is based on ethnographic fieldwork conducted with the Indian community in
Houston, as part of a NIH–NHGRI‐sponsored ethics study and sample collection initiative …