The development of an instrument that can identify children with palliative care needs: the Paediatric Palliative Screening Scale (PaPaS Scale): a qualitative study …

E Bergstraesser, RD Hain, JL Pereira - BMC palliative care, 2013 - Springer
Background The introduction of paediatric palliative care and referral to specialised teams
still occurs late in the illness trajectory of children with life-limiting diseases. The aim of this …

The Paediatric palliative screening scale: further validity testing

E Bergstraesser, M Paul, K Rufibach… - Palliative …, 2014 - journals.sagepub.com
Background: Paediatric palliative care is still often introduced late in the illness trajectory of
children with life-limiting diseases. Translating palliative care into practice continues to be a …

Who needs and continues to need paediatric palliative care? An evaluation of utility and feasibility of the Paediatric Palliative Screening scale (PaPaS)

PH Chong, J Soo, ZZ Yeo, RQ Ang, C Ting - BMC palliative care, 2020 - Springer
Background While the populations of children who can benefit from paediatric palliative care
(PPC) have been broadly defined, identifying individual patients to receive PPC has been …

Paediatric palliative screening scale as a useful tool for clinicians' assessment of palliative care needs of pediatric patients: a retrospective cohort study

IG Song, SY Kwon, YJ Chang, MS Kim, SH Jeong… - BMC palliative …, 2021 - Springer
Background Although the importance of palliative care in pediatric patients has been
emphasized, many health care providers have difficulty determining when patients should …

Pediatric palliative care: insights into assessment tools and review instruments

S Papa, A Mercante, L Giacomelli, F Benini - Children, 2023 - mdpi.com
The proper assessment of needs and outcomes in pediatric palliative care (PPC) is
imperative to ensure the best possible service to patients and families. However, given the …

The spectrum of children's palliative care needs: a classification framework for children with life-limiting or life-threatening conditions

KL Shaw, L Brook, C Mpundu-Kaambwa… - BMJ supportive & …, 2015 - spcare.bmj.com
Objectives This paper examined the potential of a new classification framework, The
Spectrum of Children's Palliative Care Needs, to facilitate identification of children with …

A tool for the evaluation of clinical needs and eligibility to pediatric palliative care: the validation of the ACCAPED scale

P Lazzarin, L Giacomelli, I Terrenato… - Journal of palliative …, 2021 - liebertpub.com
Background: Despite their importance, pediatric palliative care (PPC) services are still
scantly diffused. In addition, eligibility criteria for PPC are quite complex. Consequently …

Advances and challenges in European paediatric palliative care

LK Fraser, M Bluebond-Langner, J Ling - Medical Sciences, 2020 - mdpi.com
Advances in both public health and medical interventions have resulted in a reduction in
childhood mortality worldwide over the last few decades; however, children still have life …

Paediatric palliative care: development and pilot study of a 'Directory'of life-limiting conditions

R Hain, M Devins, R Hastings, J Noyes - BMC palliative care, 2013 - Springer
Background Children's palliative care services are developing. Rational service
development requires sound epidemiological data that are difficult to obtain owing to …

Health-related quality-of-life outcome measures in paediatric palliative care: a systematic review of psychometric properties and feasibility of use

LH Coombes, T Wiseman, G Lucas… - Palliative …, 2016 - journals.sagepub.com
Background: The number of children worldwide requiring palliative care services is
increasing due to advances in medical care and technology. The use of outcome measures …