[HTML][HTML] Changes over time in good-parent beliefs among parents of children with serious illness: a two-year cohort study

DL Hill, JA Faerber, Y Li, VA Miller, KW Carroll… - Journal of pain and …, 2019 - Elsevier
Context Parents of seriously ill children hold personal beliefs about what they should do to
be good parents. How these beliefs change over time is unknown. Objectives The objectives …

[HTML][HTML] Parental concordance regarding problems and hopes for seriously ill children: a two-year cohort study

DL Hill, PG Nathanson, RM Fenderson… - Journal of pain and …, 2017 - Elsevier
Context Parents of a seriously ill child may have different concerns and hopes for their child,
and these concerns and hopes may change over time. Objectives In a mixed-method …

Changes in parental hopes for seriously ill children

DL Hill, PG Nathanson, KW Carroll, TE Schall… - …, 2018 - publications.aap.org
BACKGROUND: Hopes of parents of children with serious illness play an important role in
decision-making and coping. Little is known about how parent hopes change over time. We …

Good-parent beliefs of parents of seriously ill children

C Feudtner, JK Walter, JA Faerber, DL Hill… - JAMA …, 2015 - jamanetwork.com
Importance Parents' beliefs about what they need to do to be a good parent when their
children are seriously ill influence their medical decisions, and better understanding of these …

“Good-parent beliefs”: research, concept, and clinical practice

MS Weaver, T October, C Feudtner, PS Hinds - Pediatrics, 2020 - publications.aap.org
Parents of ill children have willingly identified their personal beliefs about what they should
do or focus on to fulfill their own internal definition of being a good parent for their child. This …

Problems and hopes perceived by mothers, fathers and physicians of children receiving palliative care

DL Hill, VA Miller, KR Hexem, KW Carroll… - Health …, 2015 - Wiley Online Library
Background The quality of shared decision making for children with serious illness may
depend on whether parents and physicians share similar perceptions of problems and …

[HTML][HTML] Honoring the good parent intentions of courageous parents: a thematic summary from a US-based national survey

MS Weaver, ML Neumann, B Lord, L Wiener, J Lee… - Children, 2020 - mdpi.com
Background: Parents of children with complex medical needs describe an internal, personal
definition of “trying to be a good parent” for their loved child. Gaps exist in the current “good …

Care provider behaviors that shape parent identity as a “good parent” to their seriously ill child

ML Neumann, MS Weaver, B Lord, L Wiener… - Palliative medicine …, 2021 - liebertpub.com
Background: Parents of medically complex children hold deeply personal definitions of how
to be “good parents” that guide their medical decision making and interactions with …

Parental hopeful patterns of thinking, emotions, and pediatric palliative care decision making: a prospective cohort study

C Feudtner, KW Carroll, KR Hexem… - … of pediatrics & …, 2010 - jamanetwork.com
Objective To test the hypothesis that hopeful patterns of thoughts and emotions of parents of
pediatric patients receiving palliative care consultative services are related to subsequent …

Helping parents prepare for their child's end of life: a retrospective survey of cancer‐bereaved parents

L Wiener, J Tager, J Mack, H Battles… - Pediatric blood & …, 2020 - Wiley Online Library
Background Most parents vividly recall the weeks, days, and moments preceding their
child's death for years to come. Dissatisfaction with communication about their child's …