[HTML][HTML] Changes over time in good-parent beliefs among parents of children with serious illness: a two-year cohort study
Context Parents of seriously ill children hold personal beliefs about what they should do to
be good parents. How these beliefs change over time is unknown. Objectives The objectives …
be good parents. How these beliefs change over time is unknown. Objectives The objectives …
[HTML][HTML] Parental concordance regarding problems and hopes for seriously ill children: a two-year cohort study
DL Hill, PG Nathanson, RM Fenderson… - Journal of pain and …, 2017 - Elsevier
Context Parents of a seriously ill child may have different concerns and hopes for their child,
and these concerns and hopes may change over time. Objectives In a mixed-method …
and these concerns and hopes may change over time. Objectives In a mixed-method …
Changes in parental hopes for seriously ill children
BACKGROUND: Hopes of parents of children with serious illness play an important role in
decision-making and coping. Little is known about how parent hopes change over time. We …
decision-making and coping. Little is known about how parent hopes change over time. We …
Good-parent beliefs of parents of seriously ill children
C Feudtner, JK Walter, JA Faerber, DL Hill… - JAMA …, 2015 - jamanetwork.com
Importance Parents' beliefs about what they need to do to be a good parent when their
children are seriously ill influence their medical decisions, and better understanding of these …
children are seriously ill influence their medical decisions, and better understanding of these …
“Good-parent beliefs”: research, concept, and clinical practice
MS Weaver, T October, C Feudtner, PS Hinds - Pediatrics, 2020 - publications.aap.org
Parents of ill children have willingly identified their personal beliefs about what they should
do or focus on to fulfill their own internal definition of being a good parent for their child. This …
do or focus on to fulfill their own internal definition of being a good parent for their child. This …
Problems and hopes perceived by mothers, fathers and physicians of children receiving palliative care
Background The quality of shared decision making for children with serious illness may
depend on whether parents and physicians share similar perceptions of problems and …
depend on whether parents and physicians share similar perceptions of problems and …
[HTML][HTML] Honoring the good parent intentions of courageous parents: a thematic summary from a US-based national survey
MS Weaver, ML Neumann, B Lord, L Wiener, J Lee… - Children, 2020 - mdpi.com
Background: Parents of children with complex medical needs describe an internal, personal
definition of “trying to be a good parent” for their loved child. Gaps exist in the current “good …
definition of “trying to be a good parent” for their loved child. Gaps exist in the current “good …
Care provider behaviors that shape parent identity as a “good parent” to their seriously ill child
ML Neumann, MS Weaver, B Lord, L Wiener… - Palliative medicine …, 2021 - liebertpub.com
Background: Parents of medically complex children hold deeply personal definitions of how
to be “good parents” that guide their medical decision making and interactions with …
to be “good parents” that guide their medical decision making and interactions with …
Parental hopeful patterns of thinking, emotions, and pediatric palliative care decision making: a prospective cohort study
C Feudtner, KW Carroll, KR Hexem… - … of pediatrics & …, 2010 - jamanetwork.com
Objective To test the hypothesis that hopeful patterns of thoughts and emotions of parents of
pediatric patients receiving palliative care consultative services are related to subsequent …
pediatric patients receiving palliative care consultative services are related to subsequent …
Helping parents prepare for their child's end of life: a retrospective survey of cancer‐bereaved parents
Background Most parents vividly recall the weeks, days, and moments preceding their
child's death for years to come. Dissatisfaction with communication about their child's …
child's death for years to come. Dissatisfaction with communication about their child's …