As our population is aging, the global prevalence of dementia is rising. Recent extensive
reviews of the dementia literature highlight a clear need for additional qualitative research to …

It is increasingly recognized that people living with dementia should be included in
qualitative research that foregrounds their voices, but traditional research approaches can …

Health services research has been dominated by the biomedical paradigm and positivism,
and the funding cultures of biomedicine have dictated the choice of method used by …

Despite the importance and advantages of including people with dementia in research,
there are various challenges for researchers and participants to their involvement. This …

Participation in qualitative research frequently relies upon recall and verbal expression,
which may be difficult for some people with dementia. While the use of arts-based and visual …

As probably one of the most excluded groups in society, people with dementia experience
the double jeopardy (Rodeheaver and Datan 1988) of being older people with a cognitive …

Dementia is arguably one of the biggest challenges facing society today, impacting millions
of people worldwide. Nonetheless, there is only a relatively small body of research exploring …

Debates about involving people with dementia in qualitative research are extensive, yet the
range of methods used is limited. Researchers tend to rely on interview and/or observation …

Objectives The purpose of this study was to partner with stakeholders to identify gaps in care
for persons living with dementia and their family caregivers and from this list, identify …

Abstract Background The National Institute on Aging, in conjunction with the Department of
Health and Human Services as part of the National Alzheimer's Project Act, convened a …