Important advances in genetics research have been made in recent years. Such advances
have facilitated the availability of huge amounts of genetic information that could potentially …

Human genetic research, DNA banking and consent: a question of ‘form’? Page 1 Clin Genet
2001: 59: 221–239 Printed in Ireland. All rights reser6ed Opinion Human genetic research …

Recent developments in human genetic research have raised new, possibly unique issues.
Firstly, genetic data must remain confidential but also accessible, with permission, to …

The last decade has witnessed the emergence of international ethics guidelines discussing
the importance of disclosing global and also, in certain circumstances, individual genetic …

History demonstrates that, without adequate informed consent, research participants' rights
may be violated and their confidence in research as an enterprise undermined. If …

The new knowledge (and predictions) created by DNA tests and the family nature of genetic
information has already led to a new problem: the intra-familiar communication of genetic …

Against a background of increasing regulation regarding access to medical information and
the presentation of patients' confidentiality, the case of genetic information raises interesting …

▪ Abstract Human population genetics has entered a new era of public interest, of
controversy, and of ethical problems. Population genetics raises novel ethical problems …

This chapter begins with a discussion of the barriers to adequate informed consent. It then
presents examples that show how public health and genetics might come together, either in …

The chapter is focused on the rules and principles applicable to the research activities in the
genetic fields under the European legislations as well as within the international legal …