[HTML][HTML] Advance care planning in progressive neurological diseases: lessons from ALS
AA Seeber, AJ Pols, A Hijdra, HF Grupstra… - BMC palliative …, 2019 - Springer
Background There is increasing awareness of the need for an integrated palliative care
approach in chronic progressive neurological diseases. Advance care planning (ACP) is an …
approach in chronic progressive neurological diseases. Advance care planning (ACP) is an …
Advance care planning for patients with amyotrophic lateral sclerosis
BH Levi, Z Simmons, C Hanna, A Brothers… - … Lateral Sclerosis and …, 2017 - Taylor & Francis
Purpose: To determine whether an advance care planning (ACP) decision-aid could
improve communication about end-of-life treatment wishes between patients with …
improve communication about end-of-life treatment wishes between patients with …
Advance care planning in motor neuron disease: A qualitative study of caregiver perspectives
L Murray, PN Butow, K White, MC Kiernan… - Palliative …, 2016 - journals.sagepub.com
Background: Motor neuron disease is a fatal disease, characterised by progressive loss of
motor function, often associated with cognitive deterioration and, in some, the development …
motor function, often associated with cognitive deterioration and, in some, the development …
Experiences of advance care planning in Parkinson's disease and atypical parkinsonian disorders: a mixed methods systematic review
Background and purpose Advance care planning allows people to plan for their future care
needs and can include medical, psychological and social aspects. However, little is known …
needs and can include medical, psychological and social aspects. However, little is known …
Advance care planning in motor neuron disease: A systematic review
L Murray, PN Butow - Palliative & supportive care, 2016 - cambridge.org
Objective: Motor neuron disease (MND) is an incurable progressive illness, characterized by
incessant deterioration of neuromuscular function. Timely commencement of advance care …
incessant deterioration of neuromuscular function. Timely commencement of advance care …
[HTML][HTML] Advance care planning in neurodegenerative disorders: a scoping review
A Giordano, L De Panfilis, M Perin, L Servidio… - International Journal of …, 2022 - mdpi.com
Advance care planning (ACP) is increasingly acknowledged as a key step to enable patients
to define their goals/preferences for future medical care, together with their carers and health …
to define their goals/preferences for future medical care, together with their carers and health …
[HTML][HTML] The role of palliative care in chronic progressive neurological diseases—A survey amongst neurologists in the Netherlands
HAW Walter, AA Seeber, DL Willems… - Frontiers in …, 2019 - frontiersin.org
Background: Chronic progressive neurological diseases like high grade glioma (HGG),
Parkinson's disease (PD), and multiple sclerosis (MS) are incurable, and associated with …
Parkinson's disease (PD), and multiple sclerosis (MS) are incurable, and associated with …
Embedded palliative care for amyotrophic lateral sclerosis: a pilot program and lessons learned
K Fahrner-Scott, C Zapata, DL O'Riordan… - Neurology: Clinical …, 2022 - AAN Enterprises
Background and Objectives Palliative care (PC) is recommended for people with
amyotrophic lateral sclerosis (ALS), but there is scant literature about how to best provide …
amyotrophic lateral sclerosis (ALS), but there is scant literature about how to best provide …
Development of a model to guide decision making in amyotrophic lateral sclerosis multidisciplinary care
A Hogden, D Greenfield, P Nugus… - Health …, 2015 - Wiley Online Library
Background Patients with amyotrophic lateral sclerosis (ALS) face numerous decisions for
symptom management and quality of life. Models of decision making in chronic disease and …
symptom management and quality of life. Models of decision making in chronic disease and …
[HTML][HTML] A realist review of advance care planning for people with multiple sclerosis and their families
L Cottrell, G Economos, C Evans, E Silber, R Burman… - PLoS …, 2020 - journals.plos.org
Background Advance care planning (ACP) is reported to improve the quality of outcomes of
care among those with life-limiting conditions. However, uptake is low among people living …
care among those with life-limiting conditions. However, uptake is low among people living …