[HTML][HTML] Advance care planning in progressive neurological diseases: lessons from ALS

AA Seeber, AJ Pols, A Hijdra, HF Grupstra… - BMC palliative …, 2019 - Springer
Background There is increasing awareness of the need for an integrated palliative care
approach in chronic progressive neurological diseases. Advance care planning (ACP) is an …

Advance care planning for patients with amyotrophic lateral sclerosis

BH Levi, Z Simmons, C Hanna, A Brothers… - … Lateral Sclerosis and …, 2017 - Taylor & Francis
Purpose: To determine whether an advance care planning (ACP) decision-aid could
improve communication about end-of-life treatment wishes between patients with …

Advance care planning in motor neuron disease: A qualitative study of caregiver perspectives

L Murray, PN Butow, K White, MC Kiernan… - Palliative …, 2016 - journals.sagepub.com
Background: Motor neuron disease is a fatal disease, characterised by progressive loss of
motor function, often associated with cognitive deterioration and, in some, the development …

Experiences of advance care planning in Parkinson's disease and atypical parkinsonian disorders: a mixed methods systematic review

D Nimmons, L Hatter, N Davies… - European Journal of …, 2020 - Wiley Online Library
Background and purpose Advance care planning allows people to plan for their future care
needs and can include medical, psychological and social aspects. However, little is known …

Advance care planning in motor neuron disease: A systematic review

L Murray, PN Butow - Palliative & supportive care, 2016 - cambridge.org
Objective: Motor neuron disease (MND) is an incurable progressive illness, characterized by
incessant deterioration of neuromuscular function. Timely commencement of advance care …

[HTML][HTML] Advance care planning in neurodegenerative disorders: a scoping review

A Giordano, L De Panfilis, M Perin, L Servidio… - International Journal of …, 2022 - mdpi.com
Advance care planning (ACP) is increasingly acknowledged as a key step to enable patients
to define their goals/preferences for future medical care, together with their carers and health …

[HTML][HTML] The role of palliative care in chronic progressive neurological diseases—A survey amongst neurologists in the Netherlands

HAW Walter, AA Seeber, DL Willems… - Frontiers in …, 2019 - frontiersin.org
Background: Chronic progressive neurological diseases like high grade glioma (HGG),
Parkinson's disease (PD), and multiple sclerosis (MS) are incurable, and associated with …

Embedded palliative care for amyotrophic lateral sclerosis: a pilot program and lessons learned

K Fahrner-Scott, C Zapata, DL O'Riordan… - Neurology: Clinical …, 2022 - AAN Enterprises
Background and Objectives Palliative care (PC) is recommended for people with
amyotrophic lateral sclerosis (ALS), but there is scant literature about how to best provide …

Development of a model to guide decision making in amyotrophic lateral sclerosis multidisciplinary care

A Hogden, D Greenfield, P Nugus… - Health …, 2015 - Wiley Online Library
Background Patients with amyotrophic lateral sclerosis (ALS) face numerous decisions for
symptom management and quality of life. Models of decision making in chronic disease and …

[HTML][HTML] A realist review of advance care planning for people with multiple sclerosis and their families

L Cottrell, G Economos, C Evans, E Silber, R Burman… - PLoS …, 2020 - journals.plos.org
Background Advance care planning (ACP) is reported to improve the quality of outcomes of
care among those with life-limiting conditions. However, uptake is low among people living …