Letting the family know: balancing ethics and effectiveness when notifying relatives about genetic testing for a familial disorder
GK Suthers, J Armstrong, J McCormack… - Journal of Medical …, 2006 - jmg.bmj.com
Objective: To increase the awareness among at risk relatives of the availability of genetic
testing for a familial disorder while respecting their autonomy and privacy. Methods: This …
testing for a familial disorder while respecting their autonomy and privacy. Methods: This …
Medical geneticists' duty to warn at‐risk relatives for genetic disease
MJ Falk, RB Dugan, MA O'Riordan… - American Journal of …, 2003 - Wiley Online Library
The practice of medicine is being transformed by genetic research. While it is hoped that
these advances will lead to improved treatments and cures, an immediate benefit of the …
these advances will lead to improved treatments and cures, an immediate benefit of the …
Duty to warn at‐risk relatives for genetic disease: genetic counselors' clinical experience
RB Dugan, GL Wiesner, ET Juengst… - American Journal of …, 2003 - Wiley Online Library
When a patient refuses to inform relatives of their risk for genetic disease, the genetic
healthcare professional is faced with conflicting ethical obligations. On one side of the issue …
healthcare professional is faced with conflicting ethical obligations. On one side of the issue …
Genetic professionals' reports of nondisclosure of genetic risk information within families
A Clarke, M Richards, L Kerzin-Storrar… - European Journal of …, 2005 - nature.com
Patients attending genetic clinics are often the main gatekeepers of information for other
family members. There has been much debate about the circumstances under which …
family members. There has been much debate about the circumstances under which …
Genetic medicine and incidental findings: it is more complicated than deciding whether to disclose or not
G Crawford, N Foulds, A Fenwick, N Hallowell… - Genetics in …, 2013 - nature.com
Purpose: The aim of this study was to explore the clinical management of incidental findings.
Advances in the speed and sensitivity of genetic technologies have not only improved the …
Advances in the speed and sensitivity of genetic technologies have not only improved the …
Outcomes of a randomised controlled trial of a complex genetic counselling intervention to improve family communication
J Hodgson, S Metcalfe, C Gaff, S Donath… - European Journal of …, 2016 - nature.com
When an inherited genetic condition is diagnosed in an individual it has implications for
other family members. Privacy legislation and ethical considerations can restrict health …
other family members. Privacy legislation and ethical considerations can restrict health …
[HTML][HTML] Health-care professionals' responsibility to patients' relatives in genetic medicine: a systematic review and synthesis of empirical research
S Dheensa, A Fenwick, S Shkedi-Rafid, G Crawford… - Genetics in …, 2016 - Elsevier
Purpose The extent of the responsibility of health-care professionals (HCPs) to ensure that
patients' relatives are told of their risk is unclear. Current international guidelines take …
patients' relatives are told of their risk is unclear. Current international guidelines take …
[HTML][HTML] Reconsidering the duty to warn genetically at-risk relatives
MA Rothstein - Genetics in Medicine, 2018 - Elsevier
The duty to warn genetically at-risk relatives of patients is one of the most misunderstood
legal and ethical issues affecting clinical genetics. The legal doctrines are often associated …
legal and ethical issues affecting clinical genetics. The legal doctrines are often associated …
Disclosure to the family of breast/ovarian cancer genetic test results: patient's willingness and associated factors
C Julian‐Reynier, F Eisinger, F Chabal… - American Journal of …, 2000 - Wiley Online Library
Informed probands are key actors for disclosing genetic information to their relatives when a
mutation has been identified in the family. The objectives were to study women's attitudes …
mutation has been identified in the family. The objectives were to study women's attitudes …
The double helix: applying an ethic of care to the duty to warn genetic relatives of genetic information
M Weaver - Bioethics, 2016 - Wiley Online Library
Genetic testing reveals information about a patient's health status and predictions about the
patient's future wellness, while also potentially disclosing health information relevant to other …
patient's future wellness, while also potentially disclosing health information relevant to other …