Background Seriously ill children suffer from numerous symptoms at the end of their lives,
including pain, anxiety, and restricted communication. There are currently no …

Background Children with serious illness suffer from symptoms at the end of life that often
fail to be relieved. An overview is required of healthcare interventions improving and …

The assessment of health-related quality of life (HRQL) among children is an area that has
seen considerable growth over the past decade. Whereas clinicians and researchers have …

Background: The circumstances and care provided at the end of a child's life have a
profound impact on family members. Although assessing experiences and outcomes during …

Background Provision of paediatric palliative care for children with life-threatening or life-
limiting conditions and their families is often complex. Guidelines can support professionals …

Purpose This study aimed to examine health-related quality of life (HRQoL) of children and
their parents, 6 months after the child's admission to the Pediatric Intensive Care Unit …

Purpose Health-related quality of life (HRQL) has been identified as one of the core
outcomes most important to assess following pediatric critical care, yet there are no data on …

Purpose The aims of this focused review of the literature on children surviving critical illness
were to (1) determine whether health-related quality of life (HRQL) represents a clinically …

Background Provision of paediatric palliative care for children with life-threatening or life-
limiting conditions and their families is often complex. Guidelines can support professionals …

Background: In planning high-quality research in any aspect of care for children and young
people with life-limiting conditions, it is important to prioritise resources in the most …