Development of a palliative care approach for primary progressive aphasia: my experience as a person living with this rare disorder

JT Douglas - Journal of Palliative Care, 2023 - journals.sagepub.com
Frontotemporal disorders are a group of rare young-onset dementias for which there is no
cure, nor is there any way to slow the underlying progressive brain degeneration. To date …

My experience of living with nonfluent/agrammatic variant primary progressive aphasia: adaptations and strategies to improve quality of life

JT Douglas - Dementia, 2021 - journals.sagepub.com
Primary progressive aphasia is a major clinical presentation of frontotemporal lobar
degeneration and is a young-onset disorder characterized by deteriorating language skills …

Organizing a series of education and support conferences for caregivers of individuals with frontotemporal dementia and primary progressive aphasia

S Banks, E Rogalski, J Medina, A Skoglund… - Alzheimer's Care …, 2006 - journals.lww.com
Frontotemporal dementia and primary progressive aphasia are relatively rare dementias,
with average age of onset in the 40s to 60s, and cause initial degeneration in behavior and …

[HTML][HTML] Primary progressive aphasia beginning with a psychiatric disorder

L Caixeta, M Caixeta - Clinics, 2011 - SciELO Brasil
Primary progressive aphasia (PPA), frontotemporal dementia (FTD), and semantic dementia
(SD) are clinical subtypes of frontotemporal lobar degeneration (FTLD). PPA is …

A Roadmap to Enhance Care for People Living With Primary Progressive Aphasia: What Can Be Done Now?

J Gallée - Perspectives of the ASHA Special Interest Groups, 2023 - ASHA
Purpose: People living with primary progressive aphasia (PwPPA) face a progressive
decline in speech, language, and communication capabilities. PwPPA live with relatively …

Thinking outside the stroke: Treating primary progressive aphasia (PPA)

B Khayum, C Wieneke, E Rogalski, J Robinson… - Perspectives on …, 2012 - ASHA
In this article, we explore the symptoms, cause, treatment potential, and supportive services
for individuals diagnosed with Primary Progressive Aphasia (PPA). Although it is possible to …

Nonfluent primary progressive aphasia: Implications of palliative care principles for informing service delivery

N Mahendra, A Tadokoro - Topics in Language Disorders, 2020 - journals.lww.com
Purpose: Nonfluent primary progressive aphasia (nfvPPA) is an established language-led
dementia and a known variant of frontotemporal degeneration. The purpose of this article is …

Frontotemporal Dementia

K Marshall, D Hale - Home Healthcare Now, 2022 - journals.lww.com
(FTD) is the third most common dementia following Alzheimer's disease and Lewy Body
dementia. It is believed to have a worldwide prevalence of 3% to 26% in individuals ages 65 …

Adaptation to early-stage nonfluent/agrammatic variant primary progressive aphasia: a first-person account

JT Douglas - American Journal of Alzheimer's Disease & …, 2014 - journals.sagepub.com
Primary progressive aphasia (PPA) is a young-onset neurodegenerative disorder
characterized by declining language ability. The nonfluent/agrammatic variant of PPA (PPA …

Quality of life in primary progressive aphasia: What do we know and what can we do next?

L Ruggero, L Nickels, K Croot - Aphasiology, 2019 - Taylor & Francis
Background: A quality of life approach to managing communication and neurodegenerative
conditions is increasingly encouraged by professional bodies and healthcare models …