The role of parental advocacy in addressing service disparities for transition-aged youth on the autism spectrum

CE Lee, MM Burke, LS DaWalt, C Li, JL Taylor - Autism, 2022 - journals.sagepub.com
Youth with autism spectrum disorder (ASD) face challenges accessing needed services as
they transition to adulthood. Correlates of service access identified in the literature—such as …

Improving parents' ability to advocate for services for youth with autism: A randomized clinical trial

JL Taylor, LS DaWalt, MM Burke… - Autism …, 2023 - Wiley Online Library
Youth with autism face challenges accessing services as they transition to adulthood.
Improving parents' ability to advocate for services on behalf of their youth may be an …

Longitudinal change in the use of services in autism spectrum disorder: Understanding the role of child characteristics, family demographics, and parent cognitions

M Siller, N Reyes, E Hotez, T Hutman, M Sigman - Autism, 2014 - journals.sagepub.com
The aim of this study was to identify child characteristics, family demographics, and parent
cognitions that may affect access to early intervention, special education, and related …

Frequency and correlates of service access among youth with autism transitioning to adulthood

JL Taylor, NA Henninger - Journal of autism and developmental disorders, 2015 - Springer
This study examined service receipt and unmet service needs among youth with autism
spectrum disorders (ASD) in their last year of high school, as well as the youth (intellectual …

“Don't Promise Something You can't Deliver:” Caregivers' Advice for Improving Services to Adolescents and Young Adults with Autism

KA Berg, KJ Ishler, S Lytle, R Kaplan… - Autism Research …, 2023 - Wiley Online Library
Approximately 50,000 youths with autism spectrum disorders (ASD) exit US high schools
yearly to enter adult systems of care, many of whom remain dependent on family for day‐to …

Examining the associations among knowledge, empowerment, and advocacy among parents of transition-aged youth with autism

C Li, WC Cheung, MM Burke, JL Taylor, LS DaWalt - Autism, 2024 - journals.sagepub.com
Parents of individuals with autism face many challenges in accessing appropriate services
and supports for their offspring. Parents also play vital roles in advocating for their offspring's …

[HTML][HTML] It's who you know: Caregiver social networks predict service use among under-resourced children with autism

A Gulsrud, HS Lee, EMG Hassrick, S Iadarola… - Research in autism …, 2021 - Elsevier
Background Numerous studies have shown that racial/ethnic minority and under-resourced
families face barriers that delay timely access to autism services. These barriers include lack …

“Managing the wait”: Parents' experiences in accessing diagnostic and treatment services for children and adolescents diagnosed with autism spectrum disorder

J Smith-Young, R Chafe, R Audas - Health services insights, 2020 - journals.sagepub.com
Background: Parents of children and adolescents diagnosed with autism spectrum disorder
(ASD) report delays in accessing timely diagnostic and treatment services for their children …

Caregiver voices: Cross-cultural input on improving access to autism services

AC Stahmer, S Vejnoska, S Iadarola, D Straiton… - Journal of racial and …, 2019 - Springer
Decades of research have established that racial ethnic minority, low-income, and/or non-
English speaking children with autism spectrum disorder (ASD) are diagnosed later than …

Service Acquisition for Children with Autism Spectrum Disorder in Rural Southwest Virginia: The Role of Caregiver Psychoeducation

DC Martino, JR Bertollo, A Scarpa - Journal of Autism and Developmental …, 2024 - Springer
Purpose Evidence-based intervention can significantly improve the trajectory of symptoms
and overall outcomes for children with autism spectrum disorder (ASD), especially when …