Contesting Medical Miracles: A Collective Action Framing Analysis of CCSVI and Venous Angioplasty (“Liberation Therapy”) for People With Multiple Sclerosis in …
SM Driedger, E Dassah… - Science Communication, 2018 - journals.sagepub.com
This study examines how a medically contested procedure for people living with multiple
sclerosis was framed by the news media and challenged by user-generated Facebook …
sclerosis was framed by the news media and challenged by user-generated Facebook …
[HTML][HTML] People power or pester power? Multiple sclerosis, YouTube, and the liberation procedure
Background Venoplasty—dubbed the liberation procedure—has been proposed with the
controversial theory of chronic cerebrospinal venous insufficiency (CCSVI), as a possible …
controversial theory of chronic cerebrospinal venous insufficiency (CCSVI), as a possible …
Using Social Media to build a Counter-Power Movement: Multiple Sclerosis and CCSVI, a Case Study
A Bocchino - 2022 - westminsterresearch.westminster.ac …
The research is focused on a patient-based social media movement which advocated for
clinical research into a discovery rejected by key elements of the medical establishment …
clinical research into a discovery rejected by key elements of the medical establishment …
[PDF][PDF] Media responses to new medical treatments: A study of multiple sclerosis and the liberation procedure
CE Campbell - 2012 - repository.library.carleton.ca
This study probes media coverage of new and unproven medical therapies by examining
Canadian newspaper and television reporting on a novel hypothesis and experimental …
Canadian newspaper and television reporting on a novel hypothesis and experimental …
“Waiting for Science to Catch up with Practice”: an examination of 10-year YouTube trends in discussions of chronic cerebral spinal venous insufficiency treatment for …
Objective: The objective of this longitudinal study examined, first, whether people with
multiple sclerosis who previously advocated for angioplasty to treat chronic cerebral spinal …
multiple sclerosis who previously advocated for angioplasty to treat chronic cerebral spinal …
Media, politics and science policy: MS and evidence from the CCSVI trenches
D Pullman, A Zarzeczny, A Picard - BMC medical ethics, 2013 - Springer
Abstract Background In 2009, Dr. Paolo Zamboni proposed chronic cerebrospinal venous
insufficiency (CCSVI) as a possible cause of multiple sclerosis (MS). Although his theory and …
insufficiency (CCSVI) as a possible cause of multiple sclerosis (MS). Although his theory and …
[HTML][HTML] “People power” or “pester power”? YouTube as a forum for the generation of evidence and patient advocacy
Objective Venoplasty has been proposed, alongside the theory of chronic cerebrospinal
venous insufficiency (CCSVI), as a treatment for multiple sclerosis (MS). Despite concerns …
venous insufficiency (CCSVI), as a treatment for multiple sclerosis (MS). Despite concerns …
[图书][B] The Canadian liberation therapy movement: Mapping the new terrain of patient activism
MJ Hande - 2012 - collectionscanada.gc.ca
This thesis describes a Canadian patient movement—largely comprising multiple sclerosis
patients—that has developed around Chronic Cerebrospinal Venous Insufficiency (CCSVI) …
patients—that has developed around Chronic Cerebrospinal Venous Insufficiency (CCSVI) …
Social media representation of chronic cerebrospinal venous insufficiency intervention for multiple sclerosis
S Ghahari, SJ Forwell - International Journal of MS Care, 2016 - meridian.allenpress.com
Background: We conducted a rigorous review of videos related to multiple sclerosis (MS)
and chronic cerebrospinal venous insufficiency (CCSVI) treatment posted by people with MS …
and chronic cerebrospinal venous insufficiency (CCSVI) treatment posted by people with MS …
Communication for" patient liberation: the role of new media in the case of chronic cerebrospinal venous insufficiency (CCSVI) in multiple sclerosi (MS)
I Matteucci - Communication for" patient liberation: the role of new …, 2021 - torrossa.com
The article examines the opportunities for change in new media narratives. In this case new
media become tools calling for “patient liberation”. A case-based qualitative study was …
media become tools calling for “patient liberation”. A case-based qualitative study was …
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