Quality of life in dementia: a study on proxy bias
AMM Arons, PFM Krabbe… - BMC medical research …, 2013 - Springer
Background Measurement of health-related quality of life (HRQoL) in dementia is difficult. At
some point people with dementia become unable to meaningfully assess their own HRQoL …
some point people with dementia become unable to meaningfully assess their own HRQoL …
The use of the EQ-5D as a measure of health-related quality of life in people with dementia and their carers
Purpose To assess the acceptability, validity and inter-rater agreement of self-and family
carer proxy ratings of the EQ-5D as a generic health-related quality of life (HRQOL) …
carer proxy ratings of the EQ-5D as a generic health-related quality of life (HRQOL) …
Exploring self-report and proxy-report quality-of-life measures for people living with dementia in care homes
AW Griffiths, SJ Smith, A Martin, D Meads… - Quality of Life …, 2020 - Springer
Purpose There are many validated quality-of-life (QoL) measures designed for people living
with dementia. However, the majority of these are completed via proxy-report, despite …
with dementia. However, the majority of these are completed via proxy-report, despite …
Disease severity accounts for minimal variance of quality of life in people with dementia and their carers: analyses of cross-sectional data from the MODEM study
Background Due to the progressive nature of dementia, it is important to understand links
between disease severity and health-related outcomes. The aim of this study is to explore …
between disease severity and health-related outcomes. The aim of this study is to explore …
Proxy rated quality of life of care home residents with dementia: a systematic review
Background: Quality of life (QoL) is an important outcome for people with dementia living in
care homes but usually needs to be rated by a proxy. We do not know if relative or paid carer …
care homes but usually needs to be rated by a proxy. We do not know if relative or paid carer …
Addressing the bias problem in the assessment of the quality of life of patients with dementia: Determinants of the accuracy and precision of the proxy ratings
M Gomez-Gallego, J Gomez-Garcia… - The journal of nutrition …, 2015 - Springer
Objectives We aimed to examine the discrepancy between patients and caregivers' ratings
of quality of life in terms of accuracy and precision, and identify factors associated with it, in …
of quality of life in terms of accuracy and precision, and identify factors associated with it, in …
Quality of life assessments in individuals with young-onset dementia and their caregivers
D Dixit, J Spreadbury, R Orlando… - Journal of geriatric …, 2021 - journals.sagepub.com
Background: Quality of life (QoL) has seldom been investigated or explicitly measured in
young-onset dementia (YoD). The aims of this study were (1) to investigate and compare …
young-onset dementia (YoD). The aims of this study were (1) to investigate and compare …
A comparison of self and proxy quality of life ratings for people with dementia and their carers: a European prospective cohort study
Objectives: To identify correlates of self-rated and proxy-rated quality of life (QoL) in people
with dementia on (i) a dementia-specific and (ii) a capability-wellbeing QoL measure at …
with dementia on (i) a dementia-specific and (ii) a capability-wellbeing QoL measure at …
Quality-of-life assessment in dementia: the use of DEMQOL and DEMQOL-Proxy total scores
Purpose There is a need to determine whether health-related quality-of-life (HRQL)
assessments in dementia capture what is important, to form a coherent basis for guiding …
assessments in dementia capture what is important, to form a coherent basis for guiding …
Factors associated with caregivers' underestimation of quality of life in patients with Alzheimer's disease
H Zhao, JL Novella, M Dramé, R Mahmoudi… - Dementia and geriatric …, 2012 - karger.com
Objective: The aim of this study was to identify the factors associated with differences
between how Alzheimer's disease (AD) patients and their caregivers rate the patient's health …
between how Alzheimer's disease (AD) patients and their caregivers rate the patient's health …
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