Re-evaluation of diagnostic parameters is crucial for obtaining accurate data on idiopathic pulmonary fibrosis

J Kaunisto, K Kelloniemi, E Sutinen, U Hodgson… - BMC pulmonary …, 2015 - Springer
Abstract Background The FinnishIPF registry is a prospective, longitudinal national registry
study on the epidemiology of idiopathic pulmonary fibrosis (IPF). It was designed to describe …

[HTML][HTML] Management of idiopathic pulmonary fibrosis in France: a survey of 1244 pulmonologists

V Cottin, J Cadranel, B Crestani, JC Dalphin… - Respiratory …, 2014 - Elsevier
Background The present survey coordinated by the French expert centres for rare
pulmonary diseases investigated French pulmonologists' current diagnostic and therapeutic …

EMPIRE Registry, Czech Part: Impact of demographics, pulmonary function and HRCT on survival and clinical course in idiopathic pulmonary fibrosis

M Doubková, J Švancara, M Svoboda… - The clinical …, 2018 - Wiley Online Library
Introduction Prognostic factors of idiopathic pulmonary fibrosis (IPF) currently recognized
include changes in vital capacity and radiologic findings. However, most of the prognostic …

Epidemiology, survival, incidence and prevalence of idiopathic pulmonary fibrosis in the USA and Canada

G Raghu - European Respiratory Journal, 2017 - Eur Respiratory Soc
Idiopathic pulmonary fibrosis (IPF) is a very complex disease and despite the diagnostic
criteria published in evidence-based guidelines in 2011, there are significant pitfalls in …

Idiopathic pulmonary fibrosis in Sweden: report from the first year of activity of the Swedish IPF-Registry

G Ferrara, L Carlson, A Palm, J Einarsson… - European clinical …, 2016 - Taylor & Francis
Background Idiopathic pulmonary fibrosis (IPF) is an emerging problem in the western
world, being related to increasing age and implying significant costs for the diagnosis and …

Investigating significant health trends in idiopathic pulmonary fibrosis (INSIGHTS-IPF): rationale, aims and design of a nationwide prospective registry

J Behr, MM Hoeper, M Kreuter… - BMJ Open …, 2014 - bmjopenrespres.bmj.com
Background Guidelines on the diagnosis and management of idiopathic pulmonary fibrosis
(IPF), a rare manifestation of chronic progressive fibrosing interstitial pneumonia, have been …

Epidemiological studies in idiopathic pulmonary fibrosis: pitfalls in methodologies and data interpretation

A Caminati, F Madotto, G Cesana… - European Respiratory …, 2015 - Eur Respiratory Soc
Data on incidence, prevalence and mortality of idiopathic pulmonary fibrosis (IPF) are
sparse and vary across studies. The true incidence and prevalence of the disease are …

Idiopathic pulmonary fibrosis-a systematic review on methodology for the collection of epidemiological data

J Kaunisto, ER Salomaa, U Hodgson… - BMC pulmonary …, 2013 - Springer
Background Recent studies suggest that the incidence of idiopathic pulmonary fibrosis (IPF)
is rising. Accurate epidemiological data on IPF, however, are sparse and the results of …

Epidemiology and survival of idiopathic pulmonary fibrosis from national data in Canada

RB Hopkins, N Burke, C Fell, G Dion… - European Respiratory …, 2016 - Eur Respiratory Soc
Idiopathic pulmonary fibrosis (IPF) is a rare disease, with estimates of prevalence varying
considerably across countries due to paucity in data collection. The aim of this study was to …

Rationale for and design of the Idiopathic Pulmonary Fibrosis–PRospective Outcomes (IPF-PRO) registry

EC O'Brien, MT Durheim… - BMJ open …, 2016 - bmjopenrespres.bmj.com
Background Idiopathic pulmonary fibrosis (IPF) is a chronic interstitial lung disease
characterised by progressive loss of lung function. Its clinical course is variable but …