The association between parent stress, coping and mental health, and neurodevelopmental outcomes of infants with congenital heart disease
SD Roberts, V Kazazian, MK Ford… - The Clinical …, 2021 - Taylor & Francis
Caring for the complex needs of a child with congenital heart disease (CHD) can place
significant burden on the family. Parent mental health and coping have important influences …
significant burden on the family. Parent mental health and coping have important influences …
Training in neonatal neurocritical care: A case-based interdisciplinary approach
Interdisciplinary fetal-neonatal neurology (FNN) training strengthens neonatal neurocritical
care (NNCC) clinical decisions. Neonatal neurological phenotypes require immediate …
care (NNCC) clinical decisions. Neonatal neurological phenotypes require immediate …
COVID-19 mental health impact among children with early brain injury and associated conditions
TS Williams, A Deotto, SD Roberts, MK Ford… - Child …, 2022 - Taylor & Francis
This study describes the impact of COVID-19 among a clinical research sample of children
with early brain injury and associated conditions. Between March 2020 and March 2021, 64 …
with early brain injury and associated conditions. Between March 2020 and March 2021, 64 …
Towards a biopsychosocial understanding of neurodevelopmental outcomes in children with hypoxic-ischemic encephalopathy: A mixed-methods study
A Danguecan, AI El Shahed, E Somerset… - The Clinical …, 2021 - Taylor & Francis
Objective Children with hypoxic-ischemic encephalopathy (HIE) are at high risk of
neurodevelopmental delay despite the widespread adoption of therapeutic hypothermia …
neurodevelopmental delay despite the widespread adoption of therapeutic hypothermia …
Psychosocial intervention outcomes for children with congenital and neonatal conditions: systematic review
There has been a historic lack of psychosocially geared treatment studies for congenital and
neonatal conditions that impact brain development, despite well-established knowledge that …
neonatal conditions that impact brain development, despite well-established knowledge that …
From diagnoses to ongoing journey: Parent experiences following congenital heart disease diagnoses
TS Williams, KP McDonald, SD Roberts… - Journal of Pediatric …, 2019 - academic.oup.com
Despite improved survival among children with congenital heart disease (CHD), the risk of
psychosocial difficulties remains largely unchanged with an increased emphasis of …
psychosocial difficulties remains largely unchanged with an increased emphasis of …
Telehealth services for cardiac neurodevelopmental care during the COVID-19 pandemic: a site survey from the Cardiac Neurodevelopmental Outcome Collaborative
NA Kasparian, A Sadhwani, R Sananes… - Cardiology in the …, 2023 - cambridge.org
Objective: COVID-19 has markedly impacted the provision of neurodevelopmental care. In
response, the Cardiac Neurodevelopmental Outcome Collaborative established a Task …
response, the Cardiac Neurodevelopmental Outcome Collaborative established a Task …
Transdiagnostic feasibility trial of internet-based parenting intervention to reduce child behavioural difficulties associated with congenital and neonatal …
Objective We examined feasibility and acceptability of an adapted telepsychological parent-
child intervention to improve parenting skills and reduce emotional and behavioural …
child intervention to improve parenting skills and reduce emotional and behavioural …
Understanding early childhood resilience following neonatal brain injury from parents' perspectives using a mixed-method design
TS Williams, KP McDonald, SD Roberts… - Journal of the …, 2019 - cambridge.org
Objectives: The current study used a mixed-method design to qualitatively examine parents'
definitions of resilience and factors they believed optimized their child's early outcome …
definitions of resilience and factors they believed optimized their child's early outcome …
Intervention experiences among children with congenital and neonatal conditions impacting brain development: patterns of service utilization, barriers and future …
Objective The current study examined reported patterns of utilization and barriers to early
and school-age interventions, as well as directions for future care, among families of …
and school-age interventions, as well as directions for future care, among families of …