In their own words: developing the parent experiences questionnaire following neonatal brain injury using participatory design

TS Williams, KP McDonald, SD Roberts… - Brain Injury, 2018 - Taylor & Francis
Primary objective: This study aimed to create a specific questionnaire (Parent Experiences
Questionnaire) about early experiences, service involvement, and needs of children and …

Parenting a child with a traumatic brain injury: experiences of parents and health professionals

FL Brown, K Whittingham, K Sofronoff, RN Boyd - Brain injury, 2013 - Taylor & Francis
Objective: To qualitatively explore the experiences, challenges and needs of parents of
children with traumatic brain injury (TBI) in order to inform future intervention research …

Family appraisal of paediatric acquired brain injury: a social work clinical intervention trial

L Hickey, V Anderson, S Hearps… - Developmental …, 2018 - Taylor & Francis
Objective: To compare the efficacy of a new intervention 'Family Forward'with 'Usual
Care'social work practice in optimising family appraisal of a child's acquired brain injury to …

Interventions to support children after a parental acquired brain injury: a scoping review

K Dawes, G Simpson, L Lines, M van den Berg - Brain injury, 2024 - Taylor & Francis
Objective This scoping review aimed to identify manualised programs and practice
suggestions to support children's health literacy, behaviors and emotions after a parental …

Understanding early childhood resilience following neonatal brain injury from parents' perspectives using a mixed-method design

TS Williams, KP McDonald, SD Roberts… - Journal of the …, 2019 - cambridge.org
Objectives: The current study used a mixed-method design to qualitatively examine parents'
definitions of resilience and factors they believed optimized their child's early outcome …

Parents' experiences following children's moderate to severe traumatic brain injury: A clash of cultures

CI Roscigno, KM Swanson - Qualitative health research, 2011 - journals.sagepub.com
Little is understood about parents' experiences following children's moderate to severe
traumatic brain injury (TBI). Using descriptive phenomenology, we explored common …

Experiences and needs of children and adolescents affected by a parent's acquired brain injury: a systematic review and thematic synthesis

JL Ohan, HM Jackson, R Bett, GM Farmer… - Disability and …, 2024 - Taylor & Francis
Purpose To identify the experiences and needs of dependent children who have a parent
with an acquired brain injury (ABI) using a systematic review and thematic synthesis …

Parental concerns and distress after paediatric traumatic brain injury: A qualitative study

GP Prigatano, JA Gray - Brain Injury, 2007 - Taylor & Francis
Objective: To determine concerns of parents associated with high distress levels in the care
of children with traumatic brain injury (TBI). Setting and participants: Primary care …

Impact of parental acquired brain injury on children: Review of the literature and conceptual model

AMV Tiar, JE Dumas - Brain injury, 2015 - Taylor & Francis
Background: Data on children's adjustment following parental acquired brain injury (ABI) are
disparate and spare, and appear inconclusive. Nonetheless, they suggest that children's …

Family impact of acquired brain injury in children and youth

AJ de Kloet, SAM Lambregts, MAM Berger… - … of Developmental & …, 2015 - journals.lww.com
Objective: To assess the parental view on the impact of pediatric traumatic brain injury (TBI)
and nontraumatic brain injury (NTBI) on the family and its determinants. Methods: Follow-up …