Interventions targeting psychological well-being for motor neuron disease carers: A systematic review

P Cafarella, T Effing, A Chur-Hansen - Palliative & Supportive Care, 2023 - cambridge.org
Objectives This systematic review considers interventions designed to improve the
psychological well-being (PWB) of carers of people with motor neuron disease (MND) using …

Identifying the active content of interventions targeting the psychological well-being of carers of people with motor neuron disease: A systematic review

P Cafarella, T Effing, A Chur-Hansen - Palliative & Supportive Care, 2024 - cambridge.org
ObjectivesThe primary aim of this research was to use a taxonomy of behavior change
techniques (BCTTv1) to identify, map, and describe the active components of intervention …

Supporting wellbeing in motor neurone disease for patients, carers, social networks, and health professionals: A scoping review and synthesis

M Harris, G Thomas, M Thomas, P Cafarella… - … & supportive care, 2018 - cambridge.org
Objective: Disease management in motor neurone disease (MND) is focused on preserving
quality of life. However, the emphasis has so far been on physical symptoms and functioning …

Psychological interventions for people with motor neuron disease: a scoping review

N Zarotti, E Mayberry, N Ovaska-Stafford… - … Lateral Sclerosis and …, 2021 - Taylor & Francis
Objective Motor neuron disease (MND) is a rapidly progressive neurodegenerative
condition with no known cure. MND can affect every aspect of a person's life and has been …

Needs and preferences for psychological interventions of people with motor neuron disease

KR Weeks, RL Gould, C Mcdermott… - … lateral sclerosis and …, 2019 - Taylor & Francis
Background: There is a lack of knowledge about what factors may impede or facilitate
engagement in psychological interventions in people with motor neuron disease (pwMND) …

Factors to consider for motor neurone disease carer intervention research: a narrative literature review

C Gluyas, S Mathers, NH Anderson… - Palliative & supportive …, 2017 - cambridge.org
Objective: The experience of caregiving in the context of motor neurone disease (MND) is
extremely challenging. Over the past 15 years, quantitative and qualitative studies have …

[HTML][HTML] Patients experiences of maintaining mental well-being and hope within motor neuron disease: a thematic synthesis

A Soundy, N Condon - Frontiers in psychology, 2015 - frontiersin.org
Research is required that can synthesize the experiences of patients with Motor Neuron
Disease (MND). One value of being able to do this is to understand the psychological …

[HTML][HTML] Quality of life, cognitive and behavioural impairment in people with motor neuron disease: a systematic review

R Radakovic, C Radakovic, S Abrahams… - Quality of Life …, 2024 - Springer
Purpose Motor neuron disease (MND) is a neurodegenerative disease, progressively
impacting function and self-perceived quality of life (QoL). Up to 50% of people with MND …

An individualised psychosocial intervention program for persons with MND/ALS and their families in low resource settings

PT Thomas, MG Warrier, S Arun… - Chronic …, 2023 - journals.sagepub.com
Motor Neuron Disease (MND) leads to significant psychosocial distress for the person with
the illness and caregivers. Psychosocial factors influence the management and quality of life …

[HTML][HTML] Acceptance and Commitment Therapy for people living with motor neuron disease: an uncontrolled feasibility study

RL Gould, C Rawlinson, B Thompson, K Weeks… - Pilot and Feasibility …, 2023 - Springer
Background Motor neuron disease (MND) is a fatal, progressive neurodegenerative disease
that causes progressive weakening and wasting of limb, bulbar, thoracic and abdominal …