BackgroundFamily carers of people living with motor neurone disease (MND) face
continuous changes and losses during the progression of the disease, impacting on their …

Objective We aimed to get an in-depth understanding of the emotions experienced by
people with motor neurone disease (MND) and their caregivers, and to explore what impacts …

Background: Motor neurone disease (MND) is a neurodegenerative life-limiting condition.
The literature suggests that carers are potentially at risk of stress, depression and anxiety …

The term 'carer burden'has traditionally been associated with the caring experiences of
family/significant others and of healthcare providers. In palliative care, caregiving has been …

Background A developing body of evidence has provided valuable insight into the
experiences of caregivers of people with motor neuron disease; however, understandings of …

Objective: The experience of caregiving in the context of motor neurone disease (MND) is
extremely challenging. Over the past 15 years, quantitative and qualitative studies have …

Background: Motor Neurone Disease (MND) is a terminal neurological disease. Little
attention has been paid in the literature to investigating the experiences of children and …

Access to support for people with motor neurone disease (MND) is an area of concern for
the person living with the condition as well as the carers supporting them. This review is an …

Background: Burden and distress among family carers of people living with motor neurone
disease (MND) are reported widely. Evidence-based screening tools to help identify these …

Background: Motor Neurone Disease (MND) is a neurodegenerative disease with a sudden
onset, a rapid progression, a profile of complex disabilities and fatal consequences. Caring …