The Michigan Retinal Degeneration Questionnaire: a patient-reported outcome instrument for inherited retinal degenerations

GD Lacy, MF Abalem, CA Andrews, LT Popova… - American journal of …, 2021 - Elsevier
Purpose To create a psychometrically validated patient-reported outcome measure for
inherited retinal degenerations. Design Qualitative and quantitative patient-reported …

[HTML][HTML] A two-step, test-guided Mokken scale analysis, for nonclustered and clustered data

L Koopman, BJH Zijlstra, LA van der Ark - Quality of Life Research, 2022 - Springer
Purpose Mokken scale analysis (MSA) is an attractive scaling procedure for ordinal data.
MSA is frequently used in health-related quality of life research. Two of MSA's prime features …

The Michigan vision-related anxiety questionnaire: a psychosocial outcomes measure for inherited retinal degenerations

GD Lacy, MF Abalem, CA Andrews… - American journal of …, 2021 - Elsevier
Objective We sought to construct and validate a patient-reported outcome measure for
screening and monitoring vision-related anxiety in patients with inherited retinal …

[HTML][HTML] Early screening of visual processing dysfunctions in children born very or extremely preterm

MJG Kooiker, MM van Gils, YJ van der Zee… - Frontiers in Human …, 2021 - frontiersin.org
Introduction: Children with early brain damage or dysfunction are at risk of developing
cerebral visual impairment (CVI), including visual processing dysfunctions (VPD), which …

Measurement invariance of the 12-item self-administered World Health Organization Disability Assessment Schedule (WHODAS) 2.0 across early and late …

MA Ferro, M Elgie, M Dol, D Basque - Disability and Rehabilitation, 2023 - Taylor & Francis
Purpose This study examined whether the 12-item self-administered World Health
Organization Disability Assessment Schedule (WHODAS) 2.0 demonstrated measurement …

[HTML][HTML] Development and validation of the health literacy environment scale for Chinese hospitals from patients' perspective

Y Tong, Y Wu, Z Han, Z Xue, Y Wei, S Lai… - Frontiers in Public …, 2023 - frontiersin.org
Introduction While the research on improving individual health literacy by promoting
individual skills and abilities is increasing, less attention has been paid to the complexities of …

[HTML][HTML] Early intervention for children at risk of visual processing dysfunctions from 1 year of age: a randomized controlled trial protocol

MJG Kooiker, Y van der Linden, J van Dijk… - Trials, 2020 - Springer
Background An increasing number of children are suffering from brain damage-related
visual processing dysfunctions (VPD). There is currently a lack of evidence-based …

[HTML][HTML] Network analysis of the Participation and Activity Inventory for Children and Youth (PAI-CY) 7–12 years with visual impairment

EBM Elsman, CFW Peeters… - … Vision Science & …, 2020 - tvst.arvojournals.org
Purpose: Children with visual impairment often experience more difficulties regarding
participation compared to sighted peers. The Participation and Activity Inventory for Children …

[HTML][HTML] First stage psychometric testing of a new instrument for adolescents with visual impairment: the Participation and Activity Inventory for Children and Youth (PAI …

EBM Elsman, RMA van Nispen… - Journal of Patient …, 2020 - Springer
Background To assess participation of children with visual impairment, the Participation and
Activity Inventory for Children and Youth (PAI-CY) was recently developed. This study …

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TM Powell-Wiley, A Phosri… - … Settings in the 21st …, 2024 - books.google.com
Background: Despite the growing research on environment-physical activity (PA)
relationships, field experimental studies are limited. Such studies offer opportunities to focus …