A survey study of the attitudes and experiences of adults with intellectual disability regarding participation in research

NE Conroy, KE McDonald, RS Olick… - Journal of …, 2021 - Wiley Online Library
Background Historically, people with intellectual disability have been exploited in and
excluded from scientific research. To facilitate greater representation of adults with …

Lonely joy: How families with nonverbal children with disabilities communicate, collaborate, and resist in a world that values words

E Raffety, K Vollrath, E Harris… - Journal of pastoral …, 2019 - Taylor & Francis
Drawing on ethnographic research with four families with children with profound cognitive
disabilities who are nonverbal, this article argues that communication and joy among such …

Co‐producing ethics guidelines together with people with learning disabilities

M Bottomley, J Bradley, L Clark, B Collis… - British Journal of …, 2024 - Wiley Online Library
Background We are a research team of clinical, academic and advocacy‐based researchers
with and without learning disabilities, working on the Humanising Healthcare (for people …

Aging with intellectual disabilities in families: navigating ever-changing seas—A theoretical model

H Trip, L Whitehead, M Crowe… - Qualitative health …, 2019 - journals.sagepub.com
Life expectancy is increasing for people with intellectual disability, many of whom live with
family. While there has been research about aging and future planning, there is limited …

Shining a light on disability and health communication

J A. Manganello - Journal of Communication in Healthcare, 2022 - Taylor & Francis
Examining health inequities in the context of communication related to health and health
care is important for creating health equity. There has been an increasing number of studies …

Strategies to retain employees within an organization

CM Anderson - 2020 - search.proquest.com
Some organizational leaders are unable to retain talented employees, which results in
productivity loss and increased costs associated with employee recruitment and training …

From physical inclusion to belonging: Perceptions of social inclusion of university students with intellectual disabilities

MA Devine - International Journal of the Sociology of Leisure, 2023 - Springer
Attending institutes of higher education (IHE) is an emerging context for individuals with
intellectual/developmental disabilities (I/DD) across the globe, thus important to understand …

Successful strategies for including adults with intellectual disabilities in research studies that use interpretative phenomenological analysis

M Drozd, D Chadwick, R Jester - Nurse Researcher, 2021 - journals.rcni.com
Background Adults with intellectual disabilities are not often asked to participate in health
research. This may be because researchers perceive them as unable to participate …

Exploring ethical issues arising from ten years of inclusive research with people with a learning disability

L Tilly - 2020 - wlv.openrepository.com
Inclusive research enables people with a learning disability, with support, to take a lead role
at all stages of the research, including the design, process and dissemination, rather than …

Lifting the barriers excluding people living with disabilities from the benefits of inclusion in research studies

JS Bard - U. Pa. JL & Pub. Aff., 2020 - HeinOnline
As this article is being written, the world faces a global pandemic caused by the rapid spread
of a new virus' to which no one is yet immune, from which millions have become infected2 …