The care of children with congenital heart disease in their primary medical home
MR Lantin-Hermoso, S Berger, AB Bhatt… - …, 2017 - publications.aap.org
Background Advances in treatment and palliation of CHD result in more patients surviving
and being discharged from the hospital with their families. Previously unrecognized familial …
and being discharged from the hospital with their families. Previously unrecognized familial …
Guidelines for the management of neonates and infants with hypoplastic left heart syndrome: the European Association for Cardio-Thoracic Surgery (EACTS) and the …
N Alphonso, A Angelini, DJ Barron… - European Journal of …, 2020 - academic.oup.com
Disclaimer 2020: The EACTS/AEPC Guidelines represent the views of the EACTS and the
AEPC and were produced after careful consideration of the scientific and medical …
AEPC and were produced after careful consideration of the scientific and medical …
The Association of Race and Ethnicity with Mortality in Pediatric Patients with Congenital Heart Disease: a Systematic Review
M Sooy-Mossey, M Matsuura, JE Ezekian… - Journal of Racial and …, 2023 - Springer
Context Congenital heart disease (CHD) is a common condition with high morbidity and
mortality and is subject to racial and ethnic health disparities. Objective To conduct a …
mortality and is subject to racial and ethnic health disparities. Objective To conduct a …
[HTML][HTML] Parents' experiences of caring for their child at the time of discharge after cardiac surgery and during the postdischarge period: Qualitative study using an …
Background Congenital heart disease (CHD) is the most common class of birth defects,
which encompasses a broad spectrum of severity ranging from relatively minor to extremely …
which encompasses a broad spectrum of severity ranging from relatively minor to extremely …
Combining qualitative and quantitative operational research methods to inform quality improvement in pathways that span multiple settings
Background Improving integration and continuity of care across sectors within resource
constraints is a priority in many health systems. Qualitative operational research methods of …
constraints is a priority in many health systems. Qualitative operational research methods of …
Death and emergency readmission of infants discharged after interventions for congenital heart disease: a national study of 7643 infants to inform service …
Background Improvements in hospital‐based care have reduced early mortality in
congenital heart disease. Later adverse outcomes may be reducible by focusing on care at …
congenital heart disease. Later adverse outcomes may be reducible by focusing on care at …
[HTML][HTML] The impact of the National Institute for Health Research Health Technology Assessment programme, 2003-13: a multimethod evaluation.
S Guthrie, T Bienkowska-Gibbs, C Manville… - Health Technology …, 2015 - europepmc.org
Background The National Institute for Health Research (NIHR) Health Technology
Assessment (HTA) programme supports research tailored to the needs of NHS decision …
Assessment (HTA) programme supports research tailored to the needs of NHS decision …
Acceptability of a parental early warning tool for parents of infants with complex congenital heart disease: a qualitative feasibility study
Aim To explore the acceptability and feasibility of a parental early warning tool, called the
Congenital Heart Assessment Tool (CHAT), for parents going home with their infant between …
Congenital Heart Assessment Tool (CHAT), for parents going home with their infant between …
Novel biomarkers improve prediction of 365-day readmission after pediatric congenital heart surgery
DM Parker, AD Everett, ME Stabler, L Vricella… - The Annals of thoracic …, 2020 - Elsevier
Background The purpose of this study was to evaluate the association between preoperative
biomarker levels and 365-day readmission or mortality after pediatric congenital heart …
biomarker levels and 365-day readmission or mortality after pediatric congenital heart …
Identifying improvements to complex pathways: evidence synthesis and stakeholder engagement in infant congenital heart disease
Objectives Many infants die in the year following discharge from hospital after surgical or
catheter intervention for congenital heart disease (3–5% of discharged infants). There is …
catheter intervention for congenital heart disease (3–5% of discharged infants). There is …